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Displaying 41–50 of 195 for “x-linked”
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Feb 17, 2017
AGTC Leverages Funding from the Foundation to Move Promising Treatments into Clinical Trials
Company Builds on FFB’s Initial Investment to Garner $265 Million in Therapy Development Funding
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Dec 22, 2015
Retinal Researchers May Be Looking for You
If you have a heritable retinal disease, consider registering with My Retina Tracker, the Foundation’s free, secure and confidential registry for people with inherited retinal diseases.
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Jul 18, 2014
Despite Blindness, the Peaches are Sweet in Paran
The story of vision loss in a Peruvian village
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Apr 3, 2024
Recording Available: Foundation Insights Forum – March 20, 2024
The Foundation Fighting Blindness is pleased to provide a recording and full transcript of the Insights Forum, our quarterly conference call providing updates to the blinding diseases community. The call took place on March 20, 2024.
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Aug 4, 2020
Foundation Insights Forum – July 30, 2020
The Foundation Fighting Blindness is pleased to provide an audio recording and full transcript of the Insights Forum, our quarterly conference call providing updates to the inherited retinal disease community. The call took place on July 30, 2020.
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Dec 6, 2019
Offer support to patients with inherited eye diseases
While genetic testing can direct treatment and identify those at risk, it is important to have support available when patients test positive.
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Mar 13, 2023
Blind Paralympian Reaching New Heights
Isaac Jean-Paul was diagnosed with X-linked juvenile retinoschisis (XLRS) at the age of two. Isaac was always set on being a professional athlete, and now he’s a Paralympian, winning bronze in the long jump in the 2020 Games and breaking the high jump world record three times.
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Dec 13, 2021
At only three months old, Brendon was diagnosed with x-linked juvenile retinoschisis (XLRS). But with several other family members also with XLRS, Brendon knew he could still follow his passions for science and space. Now 22, Brendon is an Aerospace Engineer, starting a PhD program at UCF, and was recently awarded the prestigious National Science Foundation’s Graduate Research Fellowship.
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Apr 26, 2019
Legally Blind Artist Paul Castle Expresses His Story through Art
Paul Castle was diagnosed with X-linked retinitis pigmentosa at the age of 16, but continued to follow his passion for art. Now Paul is a full-time artist and donates 5 percent of his art sales to the Foundation.
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Lisa Pleasants is a carrier for x-linked juvenile retinoschisis. She has a son, two brothers and a cousin with the disease. She has lived with this disease in her family for generations and knows firsthand that it’s not easy.