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Foundation News

The extraordinary story of a spirited young woman who is gradually losing her sight and hearing.
An emerging gene therapy research project for a blinding retinal disease that strikes children is receiving $900,000 from Genzyme, an international pharmaceutical company.
Presented in partnership with the Third International Biennial Symposium on AMD* Thursday, October 23, 2014
A Foundation-funded study found that mutations in the HK1 gene also caused autosomal dominant retinitis pigmentosa in families from Canada and Sicily.

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