Press Releases

Thursday, May 17, 2018

Ben Shaberman will discuss how data enhances the research value of FFB’s patient registry for people with inherited retinal diseases 

Friday, April 27, 2018

 Results from ProgStar, FFB’s natural history study for people with Stargardt disease, to be used in Vitrisa’s simulation of clinical trial designs for potential therapies

Monday, April 23, 2018

Foundation Fighting Blindness, a world leader in retinal research funding, will feature nearly 100 posters and presentations on its: global patient registry, ProgStar natural history study for Stargardt disease, patient genetic testing program, and dozens of FFB-funded basic and translational research efforts. Its pre-ARVO Retinal Innovation Summit is sold out.

Monday, March 12, 2018

Notable industry executive brings more than 15 years of ophthalmic experience and award winning achievement to FFB’s mission.

Wednesday, January 3, 2018

Jason Morris, Chief Administrative Officer at TKC Holdings, has been appointed to the Foundation Fighting Blindness Board of Directors, the Foundation announced today.

Tuesday, December 19, 2017

Today’s U.S. Food and Drug Administration (FDA) approval of voretigene neparvovec, to be marketed as LUXTURNA, will be life-changing for patients with vision loss due to mutations in the RPE65 gene and a watershed moment for the inherited retinal disease field, says the Foundation Fighting Blindness.

Tuesday, November 28, 2017

The Foundation Fighting Blindness (FFB), the world’s leading private funder of research on treatments and cures for vision-robbing inherited retinal diseases, strongly opposes recent U.S. Senate and House of Representatives actions which would slow or stop research on treatments for Americans impacted by rare diseases.

Tuesday, October 17, 2017

The Foundation Fighting Blindness (FFB) announced that it has selected Benjamin Yerxa, a biotechnology and drug development executive, as its Chief Executive Officer, effective immediately.

Thursday, October 12, 2017

Approval of the gene therapy will allow treatment for people with vision-loss due to RPE65 mutations and will help advance other investigational studies with potential to help millions, FFB tells the Committee.

Thursday, September 7, 2017

The Foundation Fighting Blindness (FFB), the world’s leading private funder of research on preventions, treatments and cures for vision loss due to inherited retinal diseases is accepting applications for its next round of funding grants to be awarded May 2018.