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Is Acupuncture a Beneficial Treatment for Retinitis Pigmentosa?

acupuncture for eyesWe at the Foundation Fighting Blindness have been receiving questions about acupuncture for the treatment of retinitis pigmentosa (RP), namely because of feasibility research conducted by Ava Bittner, O.D., Ph.D., at Johns Hopkins University, in collaboration with Andy Rosenfarb, N.D., L.Ac, who specializes in acupuncture and ophthalmic Chinese medicine. Their project was funded by the National Institutes of Health (NIH).

Cutting to the chase, that study did not provide us with enough information to know if acupuncture can save or restore vision in people with RP. I will, in a moment, report on what we have learned thus far, as well as on the design of Dr. Bittner’s forthcoming acupuncture study, which will hopefully tell us more.

But I have one important comment before I discuss the research: I strongly recommend that people affected by RP and other retinal diseases hold off on trying acupuncture therapy for their retinal conditions until more is known about its risks and benefits. While Dr. Rosenfarb has used acupuncture to treat people with RP in his clinical practice, his approach has not yet been formally studied in a randomized, controlled clinical trial.

Furthermore, Dr. Bittner informed us that acupuncture needles, if not properly administered by an acupuncturist trained in specific needling techniques for treating RP, can potentially cause nerve damage, infection and other problems. So, there are real risks if the therapy is administered by someone who does not have the appropriate skill and expertise, especially given that Dr. Rosenfarb’s protocol involves administration around (not in!) the eyes. By all means, do not try this at home.

With that important disclaimer out of the way, let me tell you what we know about acupuncture. First, it is being widely used and studied by the Western medical community, especially for the treatment of chronic pain and discomfort related to a variety of diseases and conditions. Also, I recently compiled a list of about 60 acupuncture studies that are currently funded by the NIH. So, acupuncture definitely has additional potential benefits, and the breadth of those is being aggressively explored.

Second, we have evidence from a 2006 lab study that electroacupuncture — in which a low-intensity electrical current is passed through needles — might be therapeutic for retinal degenerations. An Italian research team led by Dr. Lucia Pagani showed that electroacupuncture released neurotrophic (i.e., protective) proteins in the retinas of rats with retinal degeneration. While vision in the rats was not measured, treated rats had thicker and healthier retinas than those that were untreated.

Last, we have Dr. Bittner’s recently completed 12-person feasibility study of electroacupuncture for people with RP. Results of the research were published in the journal Clinical and Experimental Optometry. In the study, participants received 10 half-hour treatments over a two-week period from Johns Hopkins acupuncturist Jeff Gould, who was trained by Dr. Rosenfarb to administer a standardized protocol designed specifically for the RP trial.

Dr. Bittner reported that eight of those participants had significant vision improvements in night vision, dark adaptation and/or visual field. She followed three of those patients for approximately a year, and their night-vision improvements were sustained. She continues to follow those three individuals to see how their night vision changes over time.

Later this year, Dr. Bittner will launch a one-year, 21-person study of electroacupuncture funded by the National Eye Institute. In this research effort, she and her colleagues will compare a control group to two therapeutic approaches: electroacupuncture and transcorneal stimulation, which involves sending a small electrical current through a wire placed on the surface of the eye.

Transcorneal stimulation has had encouraging results (increases in visual field) in small-scale German clinical trials. Dr. Bittner and her colleagues will also look at additional parameters of retinal health and vision improvement, including retinal blood flow and retinal sensitivity as measured by an electroretinogram.

Even after the small-scale, one-year study is completed, there will still be much that we don’t know about acupuncture for retinal degenerations. If there is a benefit, we still won’t know which forms of RP will benefit most and/or if acupuncture will save vision in people with other retinal diseases. Additional research will be needed, but I think Dr. Bittner and her colleagues are on the right track to getting the answers. Good research takes time.

If you are interested in participating in Dr. Bittner’s forthcoming study, send her an email at akiser@jhsph.edu.

We’ll be sure to report any new findings on acupuncture as we learn about them.


79 Responses to 'Is Acupuncture a Beneficial Treatment for Retinitis Pigmentosa?'

  1. Kerry Burke says:

    I have RP and would like to participate in your forthcoming studies.
    Thank you,
    Kerry Burke

    • jblasco says:

      Kerry, thanks for your comment.

      We would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On http://www.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for RP clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

    • Maria D. says:

      I have seen Dr Rosenfarb and underwent two weeks of treatment in his clinic. I had excellent results wherein my visual fields improved, as well as my night vision and my reading vision I am a runner and while there I participated in a 5K. I could definitely tell the difference. I was able to see runners on the sides or peripherally and most noticeable, I was able to see strollers along side of me in which fellow runners were pushing their children. Prior to the treatments, I would never see this and have nearly fallen over them on MANY occasions during several races.

      I strongly believe that while the results do vary from patient to patient, electro acupuncture and micro acupuncture are very beneficial for those who suffer from RP. I do believe that it is a treatment that requires repetition analagous somewhat to working a muscle, i.e. You do bicep curls repetitiously over a period of time and the muscle grows. If you stop the muscle doesn’t grow. Hence, I believe acupuncture treatments over an incremental period of time can be extremely beneficial for the treatment of RP. -MARIA D.Miami, FL

  2. p mlakhani says:

    my wife is suffering from RP please help me to save her vision

  3. Lauren Govan says:

    in 2009, i travelled from Australia to Vancouver, canada to get some acupunture treatment for my RP.
    It did nothing for my disease at all.
    It did however cost me several thousand dollars totalling ten thousand with flights and hotel.
    I think most of us would give up everything to have normal, healthy eyes.
    I am not against acupuncture, as i used it for treating migraines and had some success.What I am saying is if the gentleman I saw who claimed to be able to cure me (his words not mine), and I am guessing others ilke him can actually do what they say they can do, don’t you think they would have worldwide recognition?
    It was not a total loss, as I me fellow sufferers and we still keep in touch.
    Go through reliable sources such as FFB for infomation.

    • Frank says:

      Would you say the doctor who treated you in Canada was a fraud? I have been thinking of taking my kids to an herbal acupuncturist in Vancouver. Please advise. Will keep your comments confidential.

    • Mohammed says:

      Can you please tell me the name of that hospital because I saw one called Wellspring Clinic For Holistic Medicine and they put many cases in YouTube that were treated and can you give me more details about your experience
      My email is shateriprince@gmail.com

  4. Romeo says:

    My mother is suffering from RP, and she want to give it a try on acupuncture therapy. Pls advice me

  5. Billy Miqui says:

    My son is suffering from RP, please help me to save his vision. Gracias

  6. Mrs.Rehman says:

    My sister is suffering from RP..and am looking forward for some miracle..

  7. Angela Correa says:

    I have RP and would like to participate in your forthcoming studies. Thank you,

    Angela Correa

  8. Mike Sullivan says:

    Dr Bittner, let me know if you need me. I did the stress RP study with you in 2009. I’d be happy to help.

    Mike

  9. megan says:

    My dad actually just got back from New Jersey which is where Dr. Andy Rosenfarb, practices. It has been successful thus far. My dad only had about 4% of his vision left when he went in for treatments, and when he came out of it he was able to see 20% better. He hasn’t seen this good for over 15 years! His eye doctors were astounded and couldn’t believe it. You do have to go to the right doctor and someone who specializes in this type of electroacupuncture in order for it to be successful, but it ha been successful for him so far and we are very grateful for doctor Rosenfarb and would recommend him.

  10. Ashley says:

    I will start by saying I have always been a huge supporter of FFB, but am very disappointmented in this article. I’ve had several rounds of accupuncture to treat my RP and have had some progress. Any improvement makes my life easier and me more functional in the world (navigating, self sufficient, etc)
    While you suggest we wait for more research– we continue to lose more eyesight. I am well aware, as any reputable accupuncturist will say, this is a treatment not a cure.
    There are risks to ANY type of treatment and I’m disappointed with the scare tactics FFB is taking regarding a process that’s done all over the world for a variety of conditions. Who in their right mind would “try it at home”? And of course, as with anything , a person would want to go to a reputable, well trained provider. While accupuncture has benefited me, it does not work for everyone and each person must weigh the pros and cons. Lastly, Im not a statistician, but improvement in 8 of 12 people seems pretty positive to me (and certainly better than anything else available!)

  11. Nice article! I can say that acupuncture is effective in significantly improving eyesight for patients with Retinitis Pigmentosa. But it is important for patients to understand that the acupuncture treatments are not a Retinitis Pigmentosa cure, however it is a process for a patient undergoes to help enhance their vision.
    Bodyscape.biz

  12. margarita castillo says:

    My eyesight is getting smaller n smaller and willing to do anything just to keep it even as small as a keyhole

  13. Mungwari Tawanda Nicholas says:

    Please how can i get the best treatment for RP

  14. Tracey Scott says:

    My 16 year old son is suffering from RP. I cry every day and I have prayed every single day for his sight to be saved. Help him please. Amen

  15. Sid Sharma says:

    I had the acupuncture experience. I tried acupuncture for RP for eight months. It did not help me one bit. The Acupuncture Specialist kept assuring that it will work but after not getting any results I quitted.

  16. jodi says:

    Great I would love to take part if there looks like there is something that can help other I would like to be able to help to try and make things easier I have RP

    Many thanks jodi

  17. mrs. mota says:

    I have RP and have been living with it since diagnosed at the age of 16 and would really appreciate any info on saving my sight.

  18. Quincy Washington says:

    I have had RP my whole life. Good luck on your research. I look forward to the day I finally have regular sight and be able to drive.

  19. nadeem rao says:

    i am a rp patient.please help me.

  20. Andy C says:

    I have RP, and have been doing acupuncture for a year now, I hv found it beneficial. Luckily I live in Hong Kong and have access to an acupuncturist specializing in eyes. It is not a cure, as my doctor emphasized at the first meeting, but regular treatment has improved my vision and I think slowed the diseases progress. After treatment vision is noticeably better, whereas after a week without treatment it’s noticeably worse.

    • Hank g says:

      It seems that acupuncture can offer viable form of treatment. The question is, does it prevent the disease from progressing or merely mask the symptoms, similar to taking an analgesic to mask pain symptoms. Taking a codeine might make you feel better, but the underlying disease that is causing the pain still exists and could still be progressing. It would be interesting to see some long term studies to determine acupunctures efficacy in slowing down or even stopping the disease process.

  21. Eye on the Cure says:

    We appreciate our readers sharing their personal experiences and perspectives about acupuncture for retinitis pigmentosa. We look forward to following Dr. Bittner’s forthcoming research and gaining necessary additional clinical trial data around this approach. If you’re interested in another perspective, check out this post from Foundation Fighting Blindness Board Member Moira Shea: http://www.blindness.org/blog/index.php/an-ffb-board-members-perspective-on-her-experience-with-acupuncture/

  22. Marie says:

    Execcent ,thank you for all the hard work .A friend of mine Has RP .He has been supporting all the on going researches and would like to participate in the clinical researches bu has not been given the opportunity.Please contact me with the information

    • Eye on the Cure says:

      Marie, thanks for your comment.

      We would recommend that your friend visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On http://www.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for RP clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

    • Donna James says:

      Hello Dr my husband to be has RP and I would be happy if u could help us and make him part of your research.Thanks in advance.

  23. Desiree says:

    I have RP with Macula adema .
    I am 35 ,I suffer with flashes ALL the time.
    It drives me crazy .

  24. Sartish kumar says:

    Hello,iam sartish kumar from hyderabad(India).my uncle name is srinu ,he is facing problem with retinitis pigmentosa disease since 30 years…till now we did not found any treatment for this…recently I heared that acupuncture treatment is successfully doing in wellspring clinic in vancouver(Canada).is this really good treatment for this RP..?plzz suggest me any treatments..

  25. sajad says:

    My son is suffring frommRP.age 18years.Every year I am going to delhi for acupuncture treatment.paying around seventeen thousand rupees every year.but I dont know weather my son is getting banifited or. not.please let me know what should do.

    • Eye on the Cure says:

      Thank you for your comment. Unfortunately we are not in a position to provide individuals with medical advice or to provide a diagnosis. We advise you and your son to visit an eye doctor or retinal specialist. They will be best suited to make an examination and learn more.
      While there is no cure for RP, much research is being done.

      We often report on new research advancements and so we encourage you to check out our RP written articles information

      http://www.blindness.org/index.php?option=com_content&view=category&id=65&Itemid=121

      We hope you find this information helpful. We wish you and your family the best during this difficult time. Please let us know if we can assist further.

  26. Dan says:

    I tried acupuncture for my RP (well, actually Usher Syndrome Type II, close enough) while teaching in Wonju, South Korea.

    I am convinced that it did help enlarge the field of vision and allowed for me to see better in low light conditions – not a cure but a bit of improvement.

    I was also told that it could slow the degeneration of my retina – this is not provable but I am optimistic it will help.

    I received treatment four times a week for ten weeks, paying only about 6,000 won per treatment, a little over five dollars. Each treatment lasted a little less than an hour. I initially went to the Korean medical clinic for another reason and asked the doctor if he would be willing to try to work on my eyes – which he was glad to do. I do not at this point know if he is looking for additional patients.

    I guess my takeaway point is that I am glad I gave acupuncture a chance and was able to find a willing, capable doctor who did not charge very much for his efforts. I think it made a positive difference in my ability to see.

  27. James says:

    I am 43 years old and I would be willing to try acupucture to stablize or improve my vision.
    Send me details. Whatever it takes!!
    God Bless

  28. sandra pardini says:

    I have rp my 2 brothers and father have also have this all have suffered. Is there hope. I was a labor nurse 51 years old now on dissability. I want hope. Help me and every one else with this disease Please.

  29. ahmad says:

    I am interested in participating in Dr. Bittner’s forthcoming study, i am 43 years old ,and i have rp

  30. catherine munawar says:

    my son have RP.he is 29 years old and he cannot see any thing.please give me confirmation about acupuncture.thankyou

  31. Anoop says:

    I have rp in my 26 years nd pls help me

  32. Aedan O'Meara says:

    I am 71 years old male with x-linked RP I have no vision now. Would the research team be interested in me? I am a retired veterinarian with medical knowledge and understanding. I live in Ireland, 5 hours flight from Canada!

    • EyeOnTheCure says:

      Thanks for your comment.

      We would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On http://www.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for RP clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

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  37. Anil Sharma says:

    I am a software engineer by profession and having macular degeneration. My sight is going doing gradually. Now I feel very difficult managing on laptops. So, I use desktop with bigger fonts. I have always heard that there is no cure for my decease. After going through all the posts by different people across globe, it gives me bit of confidence that in couple of years we might have some solution to this decease.
    Thanks a lot…
    Keep up the good work.

  38. Nonilon Tolentino says:

    hi, my son 20 yeras old was diagnosed with RP last month, we are from the Philippines. Do you have clinics conducting your therapy here in the Philippines? Thanks. Please advise us..

    • EyeOnTheCure says:

      Thank you for your comment Nonilon. Unfortunately we are not in a position to provide individuals with medical locations. We advise you to visit a local eye doctor or retinal specialist. They will be best suited to make an examination and learn more. We wish you the best during this difficult time. Please let us know if we can assist further.

  39. Lynn Hodgson says:

    Hi, My husband has RP and like everyone else with this it is gradually getting worse, he is 65 and probably is luckier than most as he still has sight. We are planning to go to Dr Rosenfarb for Acupuncture therapy, if it can sustain it that would be good enough. My husband would also like to be considered for the forthcoming study.

    • EyeOnTheCure says:

      Lynn, We would recommend that you visit http://www.ClinicalTrials.gov. We fund many clinical trials but do not operate the studies ourselves and so reaching out them directly may be the best way for you to find out more about where they are happening and if participating is an option.

      On twww.ClinicalTrials.gov, which is maintained by the National Health Institute, you are able to search for clinical trials by searching based on your disease. Each clinical trial listing will tell you more about what the study is about and how you can contact them to see if they are recruiting and what the participant criteria may be.

      We hope this information is helpful and encourage you to contact us for additional help at info@fightblindness.org for further information if needed.

  40. I believed this says quite a bit, There’s no location like residence.

  41. wainu hernandez says:

    i need help with my wife regarding her RP case. as i do not want her to go blind, i would like to seek your advice as to the possibility of acupuncture as treatment for her condition. we are from the philippines. could you suggest to us the nearest reliable/credible clinic or hospital to visit? if there are other treatments, we would gladly appreciate to be informed. thank you very much. God bless and more power. : )

    • EyeOnTheCure says:

      Wainu,
      Thank you for your comment. Unfortunately we are not in a position to provide individuals with medical advice. We advise you to visit an eye doctor or retinal specialist. They will be best suited to make an examination and learn more. We wish you the best during this difficult time. Please let us know if we can assist further.

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  43. Chintan Parikh says:

    i have RP. is the acupuncture treatment is beneficial for me?

    • EyeOnTheCure says:

      Dear Chintan,

      As the article pointed out, some people with retinal disease seem to respond to acupuncture and some do not. Only a double-blind clinical trial will provide information on whether the treatment is beneficial for people with RP. If you do decide to obtain acupuncture treatments, you should consider obtaining a complete ophthalmological exam with visual field and visual acuity testing prior to the start of the acupuncture treatment. If you perform the ophthalmological exam again after you have completed the acupuncture treatments, it may help provide information on whether or not the treatment is beneficial for you. The clinical trials will provide the best information on efficacy.

  44. Ramil Santiago says:

    My wife has been diagnosed of RP by 3 different doctors . And the last doctor proposed stem cell but it is too costly. I was hoping if acupuncture could help her.

  45. Renee says:

    My 6 yr old daughter was diagnosed with RP last month-autosomal recessive. We are totally distraught and were told that there are no cures and to have her start learning braille…that’s it!

    I really don’t think at 6 she would allow a doctor to implement acupuncture but would be interested in further information about this very inspiring procedure. Especially since she has no understanding/knowledge of her circumstances yet. Thank you!

    • EyeOnTheCure says:

      I am sorry to hear about your daughter’s diagnosis. My suggestion would be to try and identify her gene mutation as there are already several clinical trials for RP that she might be able to get into but they all require a molecular (genetic) diagnosis to participate. For information on genetic testing, please see the following web link to download a PDF document:

      http://www.blindness.org/sites/default/files/genetic_testing_booklet_201311rev.pdf

      If you have questions on genetic testing, please call Joan Fisher at FFB headquarters.

      You should also consider participating in FFB’s “My Retina Tracker”, a free registry that can help you find out about clinical trials that are recruiting for your specific disease. For more information on “My Retina Tracker” please see the following web link:
      https://www.myretinatracker.org/

    • ray says:

      Hi Renee – I do empathize with what you are going through, with me being affected by RP.
      There is anecdotal and scientific evidence ( including those from the annals of mainstream medicine -one clinical trial by Dr Ava Bittner) that acupuncture improves visual acuity and visual fields/ light sensitivity in patients with retinitis pigmentosa. The consensus from anecdotal evidence is that 90% of patients treated with acupuncture show improvements. In most cases the improvement sustains up to a year and then maintenance by repeat acupuncture is required.
      Further study is required to identify which conditions are benefited to what extent and why.
      There are few practitioners in US. I have read experiences of people benefiting from Dr Andy Rosenfarb in NY and Dr Weidong Wu in Vancouver.
      I have undergone acupuncture for RP and have achieved vision improvements. I feel much more comfortable in low light conditions, better adaptation to low light conditions and have improved visual fields.
      I underwent the visual field scan – 30-2 and Full Field 120 administered with Carl Zeiss HFA in both eyes before and after the procedure. Of course I could have done scotopic and photopic ERG, dark adaptometry, etc before and after to document the improvement but did not consider it worthwhile as it would not serve any functional purpose.
      The visual field documentation is enough for my perspective.
      I have met and observed people with vision problems due to cone dystrophy, diabetic retinopathy, and macular degeneration achieve some improvements in vision after acupuncture.
      Coming to your situation – specifically noting the fact that your daughter was diagnosed as recently as last month I would advise not to have your daughter undergo acupuncture immediately.
      RP in most cases is a slowly progressive disease. While autosomal recessive RP has in general faster progression than autosomal dominant RP, even it is slowly progressive and the disease often takes decades to reach the final outcome of complete functional visual impairment.
      It is important to establish the course of the disease which is specific to an individual to obtain an overall prognosis – repeat checkup after one year including ERG, OCT, Visual field Scan and comparison with the previous results and identifying the specific mutation through genetic testing can give patients/caregivers valuable information to plan for the future. In many cases it gives the assurance that the disease is indeed slowly progressing and clam thoughts to plan for the future is more advisable than radical action.
      With that said I would advise you to find out more information about acupuncture for RP and understand perspectives and experiences of patients/caregivers who might be in a similar situation as yourself and have undergone acupuncture.
      Kind Rgds

  46. Ralph Borrenbergs says:

    Hello everyone, we live in the Netherlands and my son is now 12 years old and has also RP ( in combination with the Bardett & Biedl syndrome) since he was diagnosed when he was 4 years old. We are going twice a year to Istanbul in Turkey for about two and a half weeks. Here he gets 4 treatments a week. So we do 20 treatments a year. We just try to prevent that he may losing his sight especially in this period of his life. So long it is not going worse we will continue these treatments. Just to prevent his sight. Tomorrow he will get his 49th treatment. The most of the people with only RP is going there have really good results. In the beginning they will do a independent vision field test and also after the treatments they will do a vision field test they can compare. See
    http://retinitispigmentosacure.com/dr-osman-firatli/ for more information. Wishing you all the best.

  47. David Moon says:

    I would like to participate in Dr. Bittner’s forthcoming study.Usher Syndrome type 2

  48. pankaj says:

    please help me to save my vision. i am a patient of RP and suffer it very hardly.

    • EyeOnTheCure says:

      It may be useful for you to try and obtain a molecular diagnosis. Here is a web link to download an informative document on genetic testing: http://www.blindness.org/sites/default/files/genetic_testing_booklet_201311rev.pdf
      You should also enroll in FFB’s “My Retina Tracker”, a free registry that can help identify clinical trials that are recruiting. For more information on “My Retina Tracker” please see the following web link: https://www.myretinatracker.org/ The Foundation Fighting Blindness funds many clinical trials but does not manage the studies and so reaching out to them directly may be the best way for you to find out more about where they are happening and if participating is an option. The website: http://WWW.CLINICALTRIALS.GOV is maintained by the National Institutes of Health and contains a searchable list of clinical trials for most known diseases. Each clinical trial listing will provide you with information on what the study is about, the requirements for participating and contact information.

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