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Archive for the Retinitis pigmentosa Category

Donated Eyes Help Researchers Better Understand Retinal Diseases

a retina affected by RPMany people with retinal conditions such as retinitis pigmentosa (RP) and age-related macular degeneration don’t think they can donate their eyes after they’ve passed away. They can’t imagine anyone would want eyes that didn’t work well. But in reality, affected eyes are in big demand.
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A Surprising Number of Carrier Females are Affected by X-Linked Retinitis Pigmentosa

Calico catX-linked retinitis pigmentosa (XLRP) is an inherited retinal disease causing significant vision loss, sometimes complete blindness, in males. Females are often considered to be unaffected carriers of the condition, with a 50 percent chance of passing XLRP to their sons.
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First AMD Patient Receives Argus II Bionic Retina

Ray Flynn wearing the Argus IIThere’s nothing more exciting than news about vision restoration for someone blind from a retinal disease. But a report coming from across the pond is especially compelling, because it’s about the first person with age-related macular degeneration (AMD) to receive the Argus II bionic retina.
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One Thing That Scares You

Nicole Kear“Do one thing every day that scares you,” my 10-year-old son told me a few months ago. “That’s what Eleanor Roosevelt said.”

He recently studied the Roosevelts, and, it turns out, the Roosevelts had a lot to say about fear, most famously Franklin in his inaugural address: “The only thing we have to fear is fear itself.”
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Walking a Mile (or More) in Their Shoes

The Healey parentsThere’s an old saying that, depending on who’s doing the quoting, goes something like this: “You can’t really know a person until you walk a mile in his or her shoes.” That’s certainly true when it comes to grasping what it means to lose one’s eyesight to a retinal disease.
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VISIONS 2015 – Dr. José Sahel Receives Foundation’s Most Prestigious Research Honor

Dr. SahelI’ve known Dr. José Sahel for more than a decade, and every time I’m with him, I’m impressed by his humility and graciousness. He’s not much for rhetoric or small talk, but is always polite and insightful. Dr. Sahel is also very soft-spoken, but I think that’s his secret weapon. He forces you to really listen to what he’s saying.
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VISIONS 2015, Faces of VISIONS – Amy and Nathan Hayes

Amy and Nathan HayesOne of the wonderful things about the Foundation’s annual conference—taking place this year in FFB’s founding city of Baltimore—is it draws all kinds of people from around the world. And while they’ve come to gather research information and hear motivational speakers and meet others like themselves, each has his or her own story to tell.
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Sun and Funds: FFB’s Annual Summer Campaign

Summer Challenge web pageWe all know that Memorial Day is not, technically, the first day of summer. But seeing as we like to stretch summer out as much as possible, it only makes sense to kick it off… well… a few weeks early. The same premise is behind FFB’s Summer Challenge to End Blindness campaign, which began Memorial Day weekend and continues through the upcoming season.
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ARVO 2015 Highlight: The National Eye Institute Invests $4 Million in Audacious-Goals Research

future of retinal researchThe National Eye Institute’s (NEI) establishment of its Audacious Goals in 2013 was a watershed moment in the drive to cure blinding retinal diseases. The mission of the program—to regenerate the neurons and neural connections in the eye and visual system—is synonymous with the Foundation’s mission to eradicate retinal diseases. Most important, it means that the NEI is making significant investments in research that will benefit people with retinal conditions, such as retinitis pigmentosa, Usher syndrome, Stargardt disease, and age-related macular degeneration.
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ARVO 2015 Highlight: New Research Boosts Prospects for Saving Vision with RdCVF

Dr. SahelAn eye doctor could preserve meaningful vision in people with advanced retinitis pigmentosa (RP) by saving just five percent of their cones, the cells concentrated in the central retina enabling us to read, recognize colors and see in lighted conditions.
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