Listen to this page using ReadSpeaker
Archive for the Retinitis pigmentosa Category

ARVO 2015 Highlight: The National Eye Institute Invests $4 Million in Audacious-Goals Research

future of retinal researchThe National Eye Institute’s (NEI) establishment of its Audacious Goals in 2013 was a watershed moment in the drive to cure blinding retinal diseases. The mission of the program—to regenerate the neurons and neural connections in the eye and visual system—is synonymous with the Foundation’s mission to eradicate retinal diseases. Most important, it means that the NEI is making significant investments in research that will benefit people with retinal conditions, such as retinitis pigmentosa, Usher syndrome, Stargardt disease, and age-related macular degeneration.
Continue Reading…

ARVO 2015 Highlight: New Research Boosts Prospects for Saving Vision with RdCVF

Dr. SahelAn eye doctor could preserve meaningful vision in people with advanced retinitis pigmentosa (RP) by saving just five percent of their cones, the cells concentrated in the central retina enabling us to read, recognize colors and see in lighted conditions.
Continue Reading…

ARVO 2015 Highlight: A Cut-and-Paste Approach to Fixing Retinal-Disease Genes

gene editingI just returned from the annual meeting of the Association for Research in Vision and Ophthalmology (ARVO), the world’s largest eye-research conference, held this year in Denver. It attracted more than 11,000 scientists and physicians, including many of the 187 retinal researchers funded by the Foundation. The FFB science team and I worked feverishly to learn as much as possible about the latest news from the retinal-research front. It was truly exhilarating—albeit, at times, overwhelming.
Continue Reading…

A (Fundraising) Bicycle Built for Two

TThomas and Joewo men on a tandem bike, one of them blind, is not something you see every day. And that’s the point. “Here’s an old guy and a blind guy riding across the country. What can you do?”

That’s Joe Shearer, a retired, and sighted, United States Air Force veteran who, along with Thomas Hyatt, who has retinitis pigmentosa, set out today on a 4,100-mile trek from Oregon to Virginia. Their goal is to raise awareness and funds for three nonprofit groups, including the Foundation Fighting Blindness, before they finish up in late August.
Continue Reading…

Up in the Air – Almost Getting Stranded at the Airport

Airplane flying out of O'HareBecause of vision loss caused by retinitis pigmentosa, I’m almost completely blind. That does not, however, stop me from traveling alone. I do have one fear, however—being stranded at the airport. It was only recently that it became a real possibility.
Continue Reading…

Need-to-Know Information about Clinical Trials

clinical trial patientWith about 15 clinical trials underway for inherited retinal diseases, and several more poised to begin in a few years, patients are eager to sign up for access to potential vision-saving therapies.
Continue Reading…

A Renaissance Man with Vision

Louis PosenLouis Posen is one of the coolest guys on the planet. He’s president and CEO of Hopeless Records, a company he founded at the age of 21—despite the fact that he was losing eyesight to retinitis pigmentosa (RP). The 43-year-old is also a National Trustee of the Foundation Fighting Blindness. And he got into the music business by accident.

In high school, he was a punk-rock aficionado, buying records and going to every local concert he could. In film school, he came to appreciate the positive influence art, including music videos, had on people’s lives. But this was a time when many punk groups couldn’t afford to produce the high-quality videos to which many viewers were accustomed.
Continue Reading…

“You Don’t Look Blind”

EyeCure - don't look blind 2 bPerhaps the biggest misconception about people affected by retinal diseases is that they see nothing at all. While some have, indeed, gone completely blind, most are in the process of losing their vision. And depending on the person, and the disease, this takes years or decades. In some cases, central vision goes first, in others, peripheral vision.
Continue Reading…

What Everyone with a Retinal Disease Should Know about Vitamin A

blue eyeIf you think of your retinas as the engines that power your vision, then vitamin A is their fuel. Without vitamin A in our diets, we wouldn’t see.
Continue Reading…

For Rare Disease Day, Help Us Fight Retinal Diseases

logo - Rare Disease DaySince its inception in 1971, the Foundation Fighting Blindness has focused its efforts on helping people with rare diseases. In the United States, a rare disease is defined as that which affects fewer than 200,000 people. And, in fact, most vision-robbing retinal diseases—retinitis pigmentosa, Stargardt disease and Usher syndrome included—fall into that category.
Continue Reading…