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Displaying 811–820 of 828 for “retinal diseases”
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Feb 22, 2021
Managing Your Mindset, Embracing Your Voice
Charity’s recent rapid decline in vision due to RP and her daughter’s diagnosis with RP has caused her to open up about her vision loss journey. After getting involved with the Foundation, Charity now feels like she has a voice to help others in the visually impaired community.
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Feb 21, 2020
“I decided to include the Foundation in my estate plans,” Anne explained, “so that if the time ever comes when my grandchildren, or anyone else’s, experience vision loss, the scientists will have figured out how to help them.”
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Sep 20, 2019
Shawn was diagnosed with Usher syndrome at a young age. Shawn now stays involved with the blind community and participates in his local blind hockey league. In his own words, he shares his journey at the Toyota-USA Hockey Disabled Hockey Festival.
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Nov 13, 2023
IRD Community Loses Usher Syndrome Research Trailblazer William Kimberling, PhD
Dr. Kimberling helped discover the identification and characterization of several genes that cause Usher syndrome.
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Jun 20, 2023
“My husband and I have not been able to be significant Foundation supporters during our lifetimes,” she said, “but I would be honored to leave this gift as part of my legacy.”
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Jun 5, 2023
Breaking Barriers as an Attorney With Usher Syndrome
Tara is a woman of extraordinary talents. A beloved twin sister, mother of two, and wife of 10 years, Tara leads a fulfilling life dedicated to advocating for others through law.
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May 2, 2023
Mental Health Awareness: Shattering the Stigma
Athletes around the world navigate the challenges of daily life and rigorous training, but what if a factor came into play that you had less control over? What if, one day, something changed in your vision?
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May 9, 2022
Cleanlogic Co-Founder’s Inspiration Comes From His Mom
In honor of Mother’s Day, we’re sharing a special Beacon Story featuring Isaac Shapiro, co-founder of Cleanlogic. Isaac’s mother, Bea, lost her vision at only seven years old but went on to become an entrepreneur and help others in the blind and visually impaired community through adaptive technology.
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Nov 15, 2021
At the age of five, Livie was diagnosed with LCA but her doctor immediately told her parents that clinical trials were underway and that Livie could soon be eligible for treatment. Not long after, they got a phone call from Spark Therapeutics and Livie received LUXTURNA®. Now eight, Livie’s confidence is at an all-time high with her “new eyes.”
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Sep 27, 2021
Michael was matched with his first guide dog, Geo, a yellow Labrador retriever, in March 2020, two years after he applied with Guiding Eyes for the Blind. Michael and Geo now have a relationship unlike any other.