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Displaying 251–259 of 259 for “usher syndrome”
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Sep 25, 2020
ProQR Announces Virtual Presentations at Scientific Conferences
ProQR Therapeutics N.V. (Nasdaq:PRQR), a company dedicated to changing lives through the creation of transformative RNA therapies for severe genetic rare diseases, today announced virtual presentations at the Ophthalmology Futures Retina Forum, European Society of Retina Specialists (Euretina) congress and the Annual Meeting of the American Academy of Optometry (AAOpt).
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Oct 15, 2019
Rachel Wants to Raise White Cane Awareness
Rachel Luehrs describes her journey of acceptance.
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Jan 29, 2014
The Power of Suggestion — Challenges of the Placebo Effect
Even in a well-designed clinical trial, the placebo effect can rear its head.
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Dec 2, 2013
An FFB Board Member’s Perspective on Her Experience with Acupuncture
Moira Shea describes her experience with acupuncture.
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Oct 20, 2013
Just How Tricky Halloween Can Be
For those with night blindness, a symptom of many retinal diseases, most notably retinitis pigmentosa, or RP, navigating a trick-or-treating throng can be, well, a nightmare.
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Dec 20, 2012
Curing Blindness, Part 2: Dick’s Story
Stem-cell-based therapies – including those derived from a patient’s blood or skin – are among the many cutting-edge approaches to treatments the Foundation has funded for decades.
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Dec 18, 2012
Curing Blindness, Part 1: Corey’s Story
How gene therapy restored some of a boy’s sight.
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Jun 19, 2023
Beyond Labels: The Inspiring Journey of a Refsum Disease Advocate
After years of seeking answers, Alan Gunzburg was formally diagnosed with Refsum disease, a rare genetic disorder. Drawing on his unique journey, Alan sheds light on the obstacles he’s faced and how his experience motivated him to make a positive impact in the lives of others.
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Mar 20, 2015
People with retinal disease describe their experiences “not looking blind.”
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