Message from the President:
We are a volunteer-led group driven to provide information, education and support to individuals and families living with retinal degenerative diseases.
Save the date!
13th Annual Arizona VisionWalk
February 23rd, 2019
Steele Indian School Park
Chapter Presentations and Events:
2nd Annual Arizona Dining in the Dark!
Saturday, October 20, 2018
Moon Valley Country Club
151 West Moon Valley Drive
Phoenix, AZ 85023
Experience a sensory journey to a world of smell, taste, sound and texture in darkness, like many people with sight impairment, at this year’s Dining in the Dark. Savor a gourmet feast and enjoy an entertaining evening with your friends and family to raise awareness about inherited retinal diseases at the spectacular Moon Valley Country Club.
Further details will be provided in the coming weeks. For questions and additional information on the Dinner, please email Cora Colebank at email@example.com.
Our daughter, Ashley, was diagnosed with RP/Usher Syndrome 3 years ago, at the age of 25. Since that diagnosis, every imagined emotion has surfaced and resurfaced time & time again. As a Mother, I want to "fix" things for my children but I finally realized I had encountered something I cannot even try to fix.
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Associate Director of Chapter Development
Director, Events, Western Region
10350 Santa Monica Boulevard, Suite 250
Los Angeles, CA 90025