Message from the President:

Jacque Olsen, Arizona Chapter PresidentWe are a volunteer-led group driven to provide information, education and support to individuals and families living with retinal degenerative diseases.

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VisionWalk Update:

Save the date!
13th Annual Arizona VisionWalk
February 23, 2019
Steele Indian School Park
Phoenix, AZ

View the 2018 VisionWalk photos here!

Chapter Presentations and Events:

Arizona VisionWalk Kickoff and Research Panel
Saturday, January 12, 2019
Registration: 10:00 AM
Program: 10:30 AM - 12:30 PM
Lunch: 12:30 PM - 1:30 PM

Burton Barr Central Library
Pulliam Auditorium
1221 North Central Avenue
Phoenix, AZ 85004

Save-the-date for the 2019 Arizona VisionWalk Kickoff! This year, we will be joined by an esteemed panel of researchers and specialists who will share some of the latest updates in gene therapy, gene editing, genetic testing, and clinical trials. Lunch will be provided following the program.

Research Panel
Daniel C. Chung, DO, MA, Clinical Ophthalmic Lead, Spark Therapeutics
Benjamin Bakall, MD, PhD, Associated Retina Consultants
Kendra A. Klein, MD, Associated Retina Consultants
Mandi Conway, MD, FACS, Arizona Retinal Specialists

Please email Shane Cullen at or call 866-782-7330 to RSVP by January 9th.

Featured Volunteer:

Featured VolunteerJudy Hauger-
Our daughter, Ashley, was diagnosed with RP/Usher Syndrome 3 years ago, at the age of 25. Since that diagnosis, every imagined emotion has surfaced and resurfaced time & time again. As a Mother, I want to "fix" things for my children but I finally realized I had encountered something I cannot even try to fix.

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Contact Us:

Fai Mo

PH: 623-521-8141

Shane Cullen
Associate Director of Chapter Development

Donna Cohen
Director, Events, Western Region

10350 Santa Monica Boulevard, Suite 250
Los Angeles, CA  90025