Stories of Hope
After 30 years of supporting the Foundation Fighting Blindness and receiving resources, information, and hope on how to cope with Usher syndrome, my family and I are thrilled that a cure is within sight.
“I try not to get my hopes up too much, but I never lose hope; I’m determined. I just want to see my son’s face, see him get married, & see my grandchildren. I encourage everyone with a retinal disease to get a genetic test & to never ever give up hope."
Joe Caruso, founder of FOCUS Wine Foundation, knows life both with and without the ability to see. His first memory is sitting in the waiting room with his mother at the Scheie Eye Institute in Philadelphia.
When you’re the catcher, the ball always comes to you. Heather Presnar wouldn’t have had it any other way.
Christian Guardino has been singing for as long as he can remember; it’s the seeing that is something new.
The Pittsburgh VisionWalk is a team effort for the Watkins family! They have been involved in the walk since 2013. Maddie, who will start kindergarten in the fall 2017, has Usher syndrome type 1D.
Can you imagine heading into a wrestling match without being able to see your opponent? That’s the reality that Ezequiel Garcia deals with every time he steps on the mat.
Arizona VisionWalk Chair, Catrina Frost, wants her daughter, Cailee, to see her dreams through a "Sightseeing Bucket List" before she loses her sight due to Familial Exudative Vitreoretinopathy (FEVR).
Thriving in the journey. That’s been Becky Andrews’ roadmap. Becky shares her journey of losing her vision due to retinitis pigmentosa (RP) and finding resilience in her career and love for running.
Carley Colton had medical school in her sights until she was diagnosed with Stargardt disease. Now, she's still helping others as a teacher and advocate for the Foundation Fighting Blindness in Houston, Texas.