Foundation Fighting Blindness Applauds Phase 3 Study Results for Investigational Gene Therapy Treatment

Spark Therapeutics today announced positive top-line results from a Phase 3 pivotal trial of SPK-RPE65, an investigational gene therapy product for the treatment of RPE65-mediated inherited retinal dystrophies (IRDs). This research was funded in part by the Foundation Fighting Blindness, the world’s largest private funder of early, translational and clinical-stage research for blinding retinal diseases.

Foundation Receives Generous Grant from Adams Trust for Usher Syndrome Research

Research to save and restore vision for people with Usher syndrome is receiving a significant boost, thanks to a three-year, $450,000 grant awarded to the Foundation Fighting Blindness by the Marjorie C. Adams Charitable Trust. The funds will be used to support the Foundation’s diverse portfolio of Usher syndrome-related projects, including emerging gene therapies, stem-cell treatments and pharmaceuticals.

West Fairfield Chapter Leadership News

President's Letter


Welcome to the Westchester-Fairfield Chapter of the Foundation Fighting Blindness, serving communities in New York and Connecticut!  We would love to have you become part of our Chapter and help us to grow our community support and outreach to visually impaired people and their families.   Whether you are newly diagnosed or been living with visual challenges for a long time, we are here for you!

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