St. Louis Chapter Welcome Letter
Hello and welcome to the St. Louis Chapter of the Foundation Fighting Blindness (FFB)! The St. Louis Chapter is one of about 50 nationwide that offers support, information and direction for questions relating to retinal degenerative disease. We hold Chapter meetings 3 or 4 times a year, hosting various retinal doctors, researchers, low vision aid specialists, mobility experts and others. These meetings are free of charge and also offer the opportunity for those affected by retinal disease, their friends, family and anyone else interested to meet others in similar situations and hear the latest Chapter and Foundation news.
The St. Louis Chapter also aims to promote awareness in the community for the growing population of vision impaired through outreach and local media coverage. Most importantly, however, we provide fundraising support for the FFB. Our Annual VisionWalk, the FFB’s signature fundraising event, and “Dining in the Dark” activities are the primary means of generating contributions and these are augmented by donations and gifts received throughout the year.
Whatever your reason for visiting, I’m very glad you found us. My wife, Leslie, and I made our way to this website for the first time in early 2009 after learning that our son Jack has Retinitis Pigmentosa. The Foundation Fighting Blindness is one of many organizations that we researched thoroughly in an effort to find where our energy would be best spent in helping find a cure for Jack and the millions of others suffering from retinal degenerative disease. After meeting with much of the management team of the Foundation Fighting Blindness and concluding the balance of our inquiries; my family decided to fully support the FFB and its co-founder Gordon Gund.
The Foundation Fighting Blindness is the leading non-governmental funder of research to find treatments and cures for retinal degenerative disease in the world. Since it’s inception in 1971 the FFB has raised in excess of $370 Million and given approximately 80% of that money directly to research. As you will note from the reports strewn about this site, FFB funded researchers are getting closer to finding the treatments and cures we all seek.
I hope you will come to visit us at a Chapter meeting to learn more and make contact with people who may understand what you are going through. Your decision to participate can speed the progress already being made.
St. Louis Chapter President