President's Letter

Thank you for your interest in the Foundation Fighting Blindness and its mission to find treatments as well as preventative measures to fight degenerative retinal diseases.

The Foundation Fighting Blindness was established in 1971 and today is the world’s largest non-governmental funder of research for inherited retinal degenerative diseases.  Its success would not be possible without people like YOU who are helping to make a difference and find a cure!

Today, it is more important than ever that the Foundation continues to increase its funding of research and clinical trials which are now a reality. The Western New York Chapter and its volunteers are a key component in helping raise awareness about and funding for inherited retinal degenerative diseases, such as, Retinitis Pigmentosa, Stargardt Disease, Usher Syndrome and Macular Degeneration.

The Western New York Chapter strives to provide a supportive environment for individuals who may personally be affected by a retinal degenerative eye disease, has family or friends affected or those who work closely with a visually impaired client base. Our Chapter members are focused on our mission to fund research to find preventions, treatments and cures for retinal degenerative eye diseases. Our Chapter members are helping push the research further and faster.

The WNY Chapter is one of many across the country that works hard to help people keep current on the latest research and developments concerning retinal diseases. We also provide knowledge about support services and other opportunities that are available in the WNY area by arranging to host educational and social meetings throughout the year.  Chapter members often will hear from retinal and/or low vision specialists, mobility instructors, rehabilitation counselors, assistive technology specialists, low vision equipment vendors, education, vocation counselors, etc.

Our Chapter also participates in the Foundation’s signature fundraiser, the Western New York Visionwalk, which has raised significant funds for research.  Remember, with your help, a cure is insight! 

For more information on becoming involved with the Western New York Chapter, please email Debbie Hayter, Northeast Region Events Director at or call