New York City

Message from the President:

Welcome to the New York City Chapter of the Foundation Fighting Blindness (NYC FFB).   We are dedicated to providing support for the blind and low vision community, increasing public awareness and raising funds for a cure. 

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VisionWalk Update:

VisionWalk is a fun, family-friendly walk taking place in New York City and bringing together the communities in the tri-state area! Money raised through VisionWalk supports the important research funded by the Foundation Fighting Blindness. Join people just like you who are committed to changing the future for their friends and family members affected with retinal degenerative diseases! For more information go to

Information about the 12th Annual New York VisionWalk will be posted soon but registration is open. Contact Debbie Hayter, Events Director, for more information at (212) 244-1470 or

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Chapter Presentations and Events

Genetic Testing and Counseling for Inherited Retinal Diseases
Would you like to know more about genetic testing? Join the New York City Chapter of the Foundation Fighting Blindness for an informative presentation on genetic testing and counseling for inherited retinal degenerations. This two part presentation will feature:

Genetic Counseling for Inherited Retinal Diseases
Emma Bedoukian, MS LCGC
Genetic Counselor, Children’s Hospital of Philadelphia

Spark Therapeutics: Working to Create a New Path
David McCullough
Patient Access Liaison with Spark Therapeutics

We’ll also be previewing our 12th Annual New York Visionwalk to be held in April 2018 so bring your suggestions on how we can make this our best VisionWalk ever!

Saturday, December 9, 2017
Registration 10:30am with Program 10:45am – 12:00pm
Andrew Heiskell Braille & Talking Book Library
40 West 20th Street
New York, NY 10011

Please let us know you plan to attend and RSVP by December 5th to:
Olivia Niemeyer
Phone: (212) 244-1470

This presentation is brought to you by The Chatlos Foundation Public Health Education Program of the Foundation Fighting Blindness.

Featured Volunteer

The Incredible Resources ofNew York City’s Andrew Heiskell Braille and Talking Book Library

by Michelle Ritholz

A few years ago, after I was diagnosed at age 47 with Stargardt disease (juvenile macular degeneration), I discovered that it was becoming increasingly difficult for me to read print.  Things which I had always taken for granted such as visually scanning the headlines of a newspaper, reviewing my written financial statements and checking out the onscreen guide on my television set all caused my eyes to strain almost immediately.  I could still see the print, but not without considerable discomfort.  How would I be able to manage reading an entire book?  As a lifelong, avid fiction reader, this was a devastating realization.

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Contact Us:

Carl Gruber
President, New York City Chapter
(917) 417-7076

Katie Van Benschoten
Events Director (NYC Chapter and Special Events)

Debbie Hayter
Events Director (NY VisionWalk)
(212) 244-1470

80 Broad Street
Suite 3301
New York, NY  10004
Phone: (212) 244-1470
Fax: (212) 244-1540