Greater Kansas City Chapter Highlights

Celebrating Excellence

Kansas City Chapter Vision Conference Awards

Kansas City VisionWalk Receives National Award

Woohoo! We are very proud of all our families in Kansas City!  At our 2015 National Visions Conference formal dinner in Baltimore, Maryland, the Kansas City VisionWalk was awarded one of the Foundation’s most prestigious awards for Best VisionWalk in the country (one of two named) for the 2014 walk. Congratulations to our fabulous Walk Committee.

Kate and Wayne Murrow chaired the walk in 2014, raised almost $20,000 on their own, and have a higher goal for 2015.  In 2015, KC set records in walkers (468), and teams (39). The walk also involved a record number of Kohls stores, with five stores volunteering. The families held a number of fundraising events throughout the year, including a Biker Run, Bingo Night at Hamburger Mary’s, Jose Pepper’s fundraising nights, and a HUGE dinner and auction.  The VisionWalk even featured a Kona Ice truck serving free flavored icees, and the legendary Turtle Races, featuring 10 live turtles!

The Greater Kansas City Chapter

The Kansas City FFB Chapter meets quarterly to gather people concerned with retinal degenerative diseases and to share the latest research news and other information vital to managing life with vision loss. Local chapters, like Kansas City’s, activate FFB’s urgent mission in the local communities giving participants a powerful role in advancing the research that will end inherited retinal degenerative disease.

Most recently the Kansas City chapter members heard took a tour of the research facilities at the Vision Research Center, led by Dr. Peter Koulen. Earlier this year, Tim Schoen, Ph.D., FFB’s director of preclinical research, spoke to our Chapter about various potential therapies that look promising and are nearing human clinical trials. At another Chapter meeting, members toured Alphapointe Association for the Blind and learned more about the services available through this great organization. We are excited to partner with Alphapointe on these activities, and they also join FFB at our annual VisionWalk.

The Kansas City Chapter Leadership is always looking for additional volunteers to help plan their chapter meetings and other events, and to help reach out to people in the Kansas City area that can benefit from FFB’s information. Decide which skills you would like to bring to the group and make a difference in your community! Any amount of time you can afford would be appreciated, even if you can help make phone calls from your home!

For more information regarding the Kansas City Chapter and how you can get involved, please contact Steve Sroka, our Foundation staff partner, at (847) 680-0100 or