Greater Kansas City Chapter Featured Volunteer

Featured Volunteer:  Lindsey Smith

Photo of LindseyAbout seven years ago I became acquainted with the Kansas City Chapter of the Foundation Fighting Blindness (FFB).  I was searching for information concerning current research being done for retinal degenerative diseases.  After attending my first meeting with the Kansas City Chapter, I discovered so much more than just research.

I currently live and work in the Kansas City area and have been living with Stargardt disease for about 20 years now.  Stargardt disease is just one of the many retinal degenerative diseases that FFB is researching in hopes of finding a cure.

The Kansas City Chapter holds meetings throughout the year to highlight information about resources in the community that aid the visually impaired.  Topics for meetings include: disease specific information, current research, nutrition, assistive technology, and coping techniques.  You can hear from local ophthalmologists and representatives from service organizations dedicated to helping the visually impaired.  Most importantly, you can mingle with others who know exactly what you are going through.

The Chapter also hosts our annual Kansas City VisionWalk, being held on Saturday, June 22 this year at Theis Park near the Plaza.  I served as the Walk Chair last year.  It’s a great experience for anyone who wants to meet others with vision loss, and to support the Foundation’s research efforts.

I would like to extend my personal invitation to come and discover what the Kansas City Chapter has to offer.  If you are affected with a retinal degenerative disease or know someone who is, we would love to meet you!