Columbus Chapter Welcome Letter

Dear Friends of the Columbus Chapter of the Foundation Fighting Blindness:

Welcome, and thank you for your interest in our chapter. We formed this almost a decade ago in support of the Foundation’s initiatives to increase public awareness in our communities, lead fundraising efforts to help fund research and to provide information to those affected by retinitis pigmentosa (RP), macular degeneration, Usher syndrome, Stargardt disease and all other retinal degenerative diseases.

Our chapter is led by devoted volunteers who selflessly contribute time, effort and services in support of our Golf Outing, Dining in the Dark event and educational programming. This resolve inspired us to strengthen our chapter in the hopes of increasing community outreach and providing an improved network of support for affected individuals and their families.

Many of the chapter members have a vested interest as a result of a retinal degenerative disease either affecting our lives or those of family members. Our hope is that “A Cure is in Sight” for all affected.

We have two major annual events. In March, we host our Dining in the Dark event where friends, family, coworkers and community members sit down for a meal while wearing blindfolds. This is an opportunity for unaffected individuals to experience what life is like for those affected by the diseases that the Foundation Fighting Blindness aims to cure.

In September, we put together a golf outing called Golf for Sight. We invite everyone to go to the FFB website to register to play, sponsor, donate an auction item, volunteer or just make a donation directly towards the event. We have a great time with various special twists on the event, including a blindfolded tee shot.

In addition to our annual fundraisers, we also strive to host outreach and educational programs as well. We recently hosted a chapter meeting where we invited a guest speaker from Ohio State to address current gene therapy studies and a company representative demonstrating the Argus eye implant. These events are always free to attend, and we encourage family members and friends to join us.

If you are in the medical field or an organization related to optical supplies, support, etc, we are always interested in developing relationships with you to be speakers at events, have booths at events, see our members as patients, provide guidance and support to our members and generally partner in any way that could benefit our mutually targeted population.

Anyone interested is encouraged to become involved as a volunteer of the Columbus Chapter. The greater our volunteer efforts, the more successful and relevant our chapter will be. Please help us help others understand the importance of the Foundation’s many initiatives so that we can contribute collectively towards making sure “A Cure is in Sight.”

Heather Brandon

Sincerely,

Seth R. Porter

Chapter President
sethrporter@gmail.com