Boston Chapter Welcome Letter

Message From President:

Welcome to the Boston Chapter! Our Chapter is working hard to help support the astounding research advances in the broad spectrum of retinal degenerative diseases. We believe strongly that supporting medical research empowers ourselves into action toward what we all want: to save or restore our vision.

Your Boston leadership team also recognizes that it is important to support each other as we cope with progressive vision loss. To that end, we are expanding with local networking/support groups providing a forum for support and information. We currently have active groups in Arlington, Brookline, and southern New Hampshire, and expect to start a new group in Quincy soon. These social groups meet regularly to share experiences, learn more about the Foundation, and provide support and information related to vision loss. We are looking for more people who may be able to start their own networking/support group in their specific geographic area. FFB’s staff members are ready to help publicize your group; all you have to do is find a meeting location, set the date(s), and off you go!

We are incredibly excited by our ongoing Speaker Series, which feature highly informative speakers such as researchers who are on the front lines of finding the cures we so desperately seek. We also try to include speakers with knowledge of the latest technology in low vision aids to assist the visually impaired with their everyday living.  If you have a suggestion for a relevant topic or speaker, please let us know.

Of course, we have our two signature fund-raising events each year: Dining in the Dark and the Boston VisionWalk. Stay tuned for more details on these events as they develop.

So, what are you waiting for? Get in on the excitement in Boston!! We would love to hear from you and, better yet, for you to join our team. Some areas where we could use help (other ideas that fit your interests or talents are welcome!) include the following:

1. Form a networking group in your area. FFB staff will help get the word out to the affected community in your county.

2. Start a VisionWalk team. We have all sorts of resources to help you develop and grow your team. EVERY DOLLAR helps to fund research on our diseases. Whether you raise $500, $5,000, or $50,000, each and every dollar is so critical!

3. Join the chapter leadership group and help the various committee chairs with specific activities: fundraising, communications, VisionWalk, Dining in the Dark, networking groups, membership outreach, and Partners for Retinal Health. There is no limit. Whatever time you have, we would greatly appreciate your involvement.

4. Participate in any of our events and get to know us so we can get to know you. We all want our vision back; and, together, we can make that happen through medical research we can push forward with our fundraising efforts.
Boston is the “hub” not only of sports but of medicine including medicine focused on the eye. Don’t be left behind! Thank you for your support, and we hope to hear from you soon!

Martha Steele (Usher syndrome)
President, Boston Chapter