Bay Area

Message from the Presidents:

wong Dear friends of the Bay Area chapter. We are Sandra and and Henry Wong, co-presidents of the Bay Area chapter. In December of 2004, after going through a series of tests and eye examinations, we learned that our son, Connor, had Stargardt disease. As Connor’s parents, we were stunned. He is the eldest of our two sons.

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VisionWalk Update:

12th Annual Bay Area VisionWalk coming Spring 2018

Go To Local VisionWalk Page

Chapter Presentations and Events:

Save Sight Saturday
Saturday, October 28, 2017
Registration: 9:30 AM
Program: 10:00 AM

Rinconada Library
1213 Newell Rd.
Palo Alto, CA 94303

Join us for our annual Save Sight Saturday! Featuring a panel of research professionals and special guest speaker Janni Lehrer-Stein, this Save Sight Saturday one not to miss. Please email Shane Cullen at to RSVP by October 25th. 

Research Panel – Current Clinical Trials and Treatments on the Horizon

Jacque Duncan, M.D., University of California, San Francisco - Moderator
Kevin McCormack, California Institute for Regenerative Medicine – Panelist
Daniel Palanker, Ph.D., Stanford University – Panelist
Susanna Park, M.D., Ph.D., University of California, Davis – Panelist

This distinguished panel of experts in inherited retinal diseases from the Bay Area will discuss cutting-edge research, including clinical trials, that offer the potential to save and restore vision. The panelists' current projects include emerging stem-cell therapies, an improved-resolution bionic retina, and patient natural history studies.

Janni Lehrer-Stein
Attorney, Member of the National Board of Directors, Foundation Fighting Blindness

Janni was appointed by President Obama, confirmed by the United States Senate, and served two terms (2011-2016) on the National Council on Disability, the federal agency dedicated to advocating and supporting disability policy.  She served as senior disability policy advisor to the Clinton Presidential campaign. Janni was appointed to the National Academies of Science, Engineering and Medicine Forum on aging and disability in 2017, and currently also serves on the Board of Directors for Disability Rights Advocates, a non-profit law firm that conducts cutting edge access litigation. Legally blind for almost 40 years, her engagement with the disability community has fueled her commitment to advocacy. "We all grow up with a basic understanding that we cannot take our lives for granted, that life may send us in unexpected directions. But, what happens if that person is you?"

Featured Volunteer:

ElanIn most respects, Elan Zankman is a typical nine-year-old kid. He’s a fierce competitor in soccer and basketball, and enjoys a long volley on the tennis court with his father, Eric. He is also a math whiz and a fan of board games. “He’s been practicing basketball very doggedly lately,” says his mother, Pam. “Elan is an intense kid. He likes to win.”

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Contact Us

Jeff Libby
Chapter President

Shane Cullen
Bay Area Chapter and Events Lead

Western Region Office
Foundation Fighting Blindness
10350 Santa Monica Boulevard, Suite 250
Los Angeles, CA 90025
(310) 201-3005 office
(310) 201-3008 fax