Message from the President:
We are a volunteer-led group driven to provide information, education and support to individuals and families living with retinal degenerative diseases.
Chapter Presentations and Events
Thanks to all who attended our Ask The Expert presentation on November 18th. A special thanks to Dr. Steve Rose and Dr. Benjamin Bakall who provided updates on current and emerging therapies to save and restore vision.
We were pleased to see that so many of you were able to stay for the picnic lunch after the presentation. We’d like to continue to have these social activities to give you a chance to meet and mingle with others in your community. If you have other ideas and suggestions on group activities, don’t hesitate to run them by us for consideration!
Our daughter, Ashley, was diagnosed with RP/Usher Syndrome 3 years ago, at the age of 25. Since that diagnosis, every imagined emotion has surfaced and resurfaced time & time again. As a Mother, I want to "fix" things for my children but I finally realized I had encountered something I cannot even try to fix.
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Mary Ann Subleski
Director, Chapter Development
Foundation Fighting Blindness
977 Lakeview Parkway 140,
Vernon Hills, IL 60061
(847) 680-0100 ext. 26- office