Florida-Times Union—May 4, 2011—First Coast Family Confronts Rare Eye Disease Affecting Both Daughters

On a recent Saturday morning, Emma Johnson, her little sister Haley and their mom, Angie, climbed into the family SUV to go to the Riverside Arts Market. Emma, 11, toted her beloved guitar, while Haley, 6, clutched an assortment of crayons and drawing pads.