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Salt Lake City, UT

Utah Chapter
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Message from the President:

Welcome to the Utah Chapter of the Foundation Fighting Blindness.

We are a volunteer-led group that for the last 15 years has been providing information, education and support to individuals and families living with retinal degenerative diseases. Our Chapter goals are threefold: To raise public awareness of the Foundation Fighting Blindness and its mission; to provide support and information to individuals and their families living with a retinal degenerative disease; and to support the mission of FFB by raising funds for research, preventions, treatments, and cures for all retinal diseases.

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VisionWalk Update:

2013 Utah VisionWalk

Saturday, June 15, 2013
Sugar House Park
Salt Lake City Utah

To register click here.

Go to Your Local VisionWalk >

 



Chapter Meetings and Events:

TBA



Contact Us:

James Huber
President

(866) 782-7330
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Brittney Bannon
Events Manager

Office: 972-378-3555
Cell: 817-791-5338
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Christina Donatelli
Development Manager, West
(310) 450-2910
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Western Region Office
Foundation Fighting Blindness
2800 28th Street, Suite 310
Santa Monica, CA  90405
(310) 450-2910 office
(310) 450-2717 fax

Featured Volunteer:

The Utah Chapter of the Foundation Fighting Blindness is honored to have a very dedicated volunteer on our board – Sarah Eliason.

As a mother of two young boys with juvenile retinoschisis, Sarah felt she needed to be active in promoting awareness and generating funds for research. X-linked juvenile retinoschisis (XLRS) is a rare hereditary disease of the retina. XLRS affects males and is most commonly diagnosed in childhood. The gene for this disease is located on the X chromosome, so females typically are unaffected, but can pass the gene to their sons, who are then affected by the disease.

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The VISIONS Experience

Check out the recipients of the 2012 Member Excellence Awards and other highlights from the Foundation’s VISIONS 2012 conference on the REWIND page.



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