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Message from the President:
Welcome to the Utah Chapter of the Foundation Fighting Blindness.
We are a volunteer-led group that for the last 15 years has been providing information, education and support to individuals and families living with retinal degenerative diseases. Our Chapter goals are threefold: To raise public awareness of the Foundation Fighting Blindness and its mission; to provide support and information to individuals and their families living with a retinal degenerative disease; and to support the mission of FFB by raising funds for research, preventions, treatments, and cures for all retinal diseases.
Read more >
VisionWalk Update:
TBA
Go to Your Local VisionWalk >
Chapter Meetings and Events:
Science & Technology Forum
Saturday, February 2, 2013
8:30 A.M. - 9:00 A.M. Registration
9:00 A.M. - 12:00 P.M. Program
John A. Moran Eye Center
First Floor Auditorium
65 Mario Capecchi Drive
Salt Lake City, UT 84132
Free underground parking accessible at the front of the building.
"Curing Dominant Retinitis Pigmentosa and Cone Dystrophy in Animal Models"
Wolfgang B. Baehr, Ph.D.
John A. Moran Eye Center, UT
“Retinal Research Update at the John A. Moran Eye Center”
Robert Marc, Ph.D.
Director of Research, John A. Moran Eye Center
"Moving Towards A Cure"
Timothy J. Schoen, Ph.D.
Director, Science and Research Communication, FFB
Light Refreshments Provided
Free to attend, please RSVP to Christina Donatelli at (866) 782-7330 or
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Contact Us:
James Huber
President
(866) 782-7330
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Brittney Bannon
Events Manager
Office: 972-378-3555
Cell: 817-791-5338
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Christina Donatelli
Development Manager, West
(310) 450-2910
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Western Region Office
Foundation Fighting Blindness
2800 28th Street, Suite 310
Santa Monica, CA 90405
(310) 450-2910 office
(310) 450-2717 fax
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Featured Volunteer:
The Utah Chapter of the Foundation Fighting Blindness is honored to have a very dedicated volunteer on our board – Sarah Eliason.
As a mother of two young boys with juvenile retinoschisis, Sarah felt she needed to be active in promoting awareness and generating funds for research. X-linked juvenile retinoschisis (XLRS) is a rare hereditary disease of the retina. XLRS affects males and is most commonly diagnosed in childhood. The gene for this disease is located on the X chromosome, so females typically are unaffected, but can pass the gene to their sons, who are then affected by the disease.
Read more >
The VISIONS Experience
Check out the recipients of the 2012 Member Excellence Awards and other highlights from the Foundation’s VISIONS 2012 conference on the REWIND page.
   
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