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Message from the President:
Welcome to the Utah Chapter of the Foundation Fighting Blindness.
We are a volunteer-led group that for the last 15 years has been providing information, education and support to individuals and families living with retinal degenerative diseases. Our Chapter goals are threefold: To raise public awareness of the Foundation Fighting Blindness and its mission; to provide support and information to individuals and their families living with a retinal degenerative disease; and to support the mission of FFB by raising funds for research, preventions, treatments, and cures for all retinal diseases.
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VisionWalk Update:
2013 Utah VisionWalk
Saturday, June 15, 2013 Sugar House Park Salt Lake City Utah
To register click here.
Go to Your Local VisionWalk >
Chapter Meetings and Events:
TBA
Contact Us:
James Huber President (866) 782-7330
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Brittney Bannon Events Manager Office: 972-378-3555 Cell: 817-791-5338
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Christina Donatelli Development Manager, West (310) 450-2910
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Western Region Office Foundation Fighting Blindness 2800 28th Street, Suite 310 Santa Monica, CA 90405 (310) 450-2910 office (310) 450-2717 fax
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Featured Volunteer:
The Utah Chapter of the Foundation Fighting Blindness is honored to have a very dedicated volunteer on our board – Sarah Eliason.
As a mother of two young boys with juvenile retinoschisis, Sarah felt she needed to be active in promoting awareness and generating funds for research. X-linked juvenile retinoschisis (XLRS) is a rare hereditary disease of the retina. XLRS affects males and is most commonly diagnosed in childhood. The gene for this disease is located on the X chromosome, so females typically are unaffected, but can pass the gene to their sons, who are then affected by the disease.
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The VISIONS Experience
Check out the recipients of the 2012 Member Excellence Awards and other highlights from the Foundation’s VISIONS 2012 conference on the REWIND page.
 
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