Please login to post a response.

• Stargardts Disease
• Posted: 2012-03-26 17:55:46 By Leticia T
• I am 33 years old and have been diagnosed with this retinal disorder. It has completely changed my life in a manner that I never imagined! In the middle of my thriving career and in the midst of completing my college degree. I now feel completely lost. I am currently on disability provided by my employer and in the process of acquiring social security benefits. Please help! I want to know how people deal with this disease and continue their way of living.
  Do they continue college? Are they still working?? Do they qualify for benefits? How can I be considered for clinical trials?
  I just want to know I'm not alone! =-(
  
  Thanks!
  

• Posted: 2012-09-05 20:34:04 By Lisa F
• My son has had Stargardts for 10 years now. He was diagnosed at 16. He definitely went through a hard time for about a few years. He now has graduated from college with a degree in Marketing. He has a great job, an awesome girlfriend, his own apartment, and all in all a great life! I think the hardest part is that he can't drive but he has worked around it. He takes the bus to work and lives in an area that he can walk to a lot of places. I know it must be hard for him but he's been very successful and I'm so proud of him. I'm sorry that you have to go through this but just know that you can accomplish anything you want to! He has never gotten any benefits so I can't advise on that. Good luck to you.