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  • Episodic dark spots when first waking with stargardt's?
  • Posted: 2011-08-21 20:40:35 By Lauren P
  • My husband was originally diagnosed with MEWDs three years ago because he had episodic spots in his vision when he first woke up- but he was very atypical and no one was convinced of this diagnosis. Last year his vision started deteriorating steadily and eventually the amazing doctors we've been working with decided he has Stargardt's. However, his genetic test came back negative. The doctors still believe he has stargardts though. Despite having the frist signs at 40 heseemsto be a classic case of it.
    This week he started having another bout of seeing a dark spot in his central vision when he firsts wakes (these always coincide with periods of intense stress for him). Anyway, does anyone have experience with this? thank you.
  • Stress
  • Posted: 2013-01-14 12:41:16 By Stacey R
  • I have noticed that the more stress I am under, the more blurry my vision gets.
    I have had to re-evaluate some relationships and have had to make changes in order to keep my stress levels as low as possible.
    I had a bout about a year ago. It was the beginning of December and I got to work and couldn't focus on my computer screen. The more I tried, the more aggitated I got and upset and the more blurry it got.
    I called my doc immediately and they got me an appt the next day.
    That is when I found out that stress directly interferes with your vision when you have this disease.
    Keep the stress at a minimum. I had to get on some "happy pills" in order to keep it in check.
    Also, my vision in the morning is the worst. As the day progresses, it usually gets a little better.
    I was diagnosed a little over a year ago (Sept 2011). I'm 40. I have not got back my blood work yet, but that should be coming very soon. I recently called my doc because I've been having trouble hearing as well and found a similiar disease called Ushers Syndrome. I thought I might have that, but when I called my doc, they said that my tests show typical Stargardt's signs, not Ushers.
    I was releived to find out I wasn't going deaf along with going blind.
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