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• I don't know how to help.
• Posted: 2010-11-20 11:03:29 By Brandy W
• My husband was diagnosed with this disease at age 5 and he is 29. He tells me all the time he thinks his vision is getting worse but he was just at the eye dr. He has trouble seeing the scores of games on our 42 in TV and reading signs at night. I know the rflection thing off the signs may be causing that problem, but I don't know what to tell him. He asked me if I would still love him it he was blind, and it broke my heart.I've suggested that he go to a specialist and he tells me that is dr. is good enough. I think his dr may be very old and I think he needs a new age opinion. Any suggestion or information?

• Posted: 2011-02-08 21:20:13 By Paul R
• yes he should see a specialist for low vision not a regular eye dr. where are you located

• Posted: 2011-09-19 16:31:39 By Christy V
• I was diagnosed with Stargardt's last year and was really surprised at how little information all of my doctors could give me. They told me it was Stargardt's and a brief summary of what it was and that's it. I've researched it myself on the web and looked at peoples stories on stargardts.net and now sometimes I feel that I know more about it than my opthalmologist, retinal specialist and low vision specilist do! I just wanted to let you know that even if your husband goes to a better doctor that he might not get that much help out of them.