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  • Calling all NZers (ALL AGES)
  • Posted: 2008-02-15 22:16:52 By Amanda C
  • Hey there, am calling all Kiwis to this message. I'm currently designing a web-page made specifically for Usher Syndrome patients in NZ so we can share stories, questions, introduce ourselves and swap info etc... If you have any ideas for me to include on this webpage, let me know. I'll also make it avaliable for others in the world. It was an idea my friend and I had, seeing this is such a small country and it's more possible to maybe even organise regular events to get together in person. How about it? Email me your email address if you want to be on the mailing list and include a little statement about yourself!
    Thanks,
    AJ :)
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