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• cone rod dystrophy
• Posted: 2012-08-20 07:09:41 By janine v
• Hi my name is janine and i am 46 years old. I have CRD and would like to talk.

• Hi Janine
• Posted: 2012-09-11 19:40:01 By Jessica Y
• Hi Janine this is Jess. Thank you for responding to my message. Its been hard to find someone out there that has CRD because of it being so rare. When did you find out you had it? I will be 41 this Friday but found out I had it when I was 37. I live in Texas and my doctor is in Dallas at Texas Retina. What is your vision? Mine as of last Feburary is 20/400 in both eyes. I have a hard time with certain things on a daily basis but have adapted. Please write me bsck snd tell me about yourself.

• CRD
• Posted: 2012-11-02 13:43:06 By Marty L
• Janine my name is Marty i am 32, i have been told my whole i have stargardts but lost my vision and am told i have CRD.

• CRD
• Posted: 2012-11-13 16:28:10 By Samantha M
• Hi Janine, I'm Samantha. I found out two years ago that I had CRD and I just turned 25. My vision loss is progressing quickly which is scary. I live in Australia without my family and have become very independent but I am now finding it hard to drive which makes my dependence on others pretty great. It's so frustrating. I'm just glad there are other people like me to talk to who are going through the same thing.

• Posted: 2013-01-30 11:33:12 By emily c
• My son as this,he is 13. Please tell me why is it he cant sleep at night. I need to be with himthrough the night otherwise he can't sleep. He will not leave my side. He is very small for hes age. as i said heis 13 nearly 14 and wears 9 10 year trousers. Small for hes age. is this all normal?