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• Introduction
• Posted: 2012-04-16 11:59:47 By Charlotte R
• Hello, My name is Charlotte and I'm 39. I was diagnosed with Stargardt's when I was 11 and have been legally blind since I was a teen.
  In December of last year, during a routine check up my doctor announced that he now felt my symptoms pointed to Cone_Rod Dystrophy rather than Stargardt's. I was shocked. I had planned to spend my life with poor vision, but not to lose it completely.
  I'm a mom of two, married, and am self employed as a sculptor and exercise instructor. I continue to do my art, but am not sure how much longer I will be able to continue. There seems to be so many unknowns with this disease and it's frustrating to try and plan for the future.
  Would love to be able to chat with others about their experience.

• Posted: 2012-06-12 12:59:57 By Jack M
• I was diagnosed with cone rod dystrophy when I was 6. I'm 32 now and I can still see pretty well.
  
  My brother, who has the same condition, has lost a lot of his vision over the past few years, but I'm hopeful with stem cell and gene therapy, within the next 10-15 years there will be a treatment. Perhaps not an all out cure, but definitely a treatment.
  
  Keep the faith.