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Search Message Boards » Cone-Rod Dystrophy

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  • Cone Dystrophy
  • Posted: 2012-03-23 10:23:32 By Kim H
  • I have a 16 year old daughter who was diagnosed with cone dystrophy at 1 year. We have tried to have the ERG test done twice but she has been unable to tolerate the light. Her diagnosis was given to her based on her classic symptoms of cone dystrophy. Does anyone know of any surgeries or studies being performed on people with cone distrophy? Or can anyone tell me where to start looking for studies that she could be in? Sometimes the internet is just too overwhelming.
    Thank you
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