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• Re: CRD & my son
• Posted: 2010-10-08 18:14:29 By Christine D
• Hi there, and aloha from Hawaii! My 11 yr old son was diagnosed in May of this year. He is currently at 20/100 in both eyes. We have him on mega doses of omega 3 fish oil, lutein, and bilberry. So far no improvement but he hasn't gotten worse either. I created an informational blog at www.retinaldystrophymom.blogspot.com if anyone is interested. I have so many thoughts that it would take way too much space here. I invite you to check out the blog and share it!
  
  Also, have several $2.00 off coupons for Bausch & Lomb Preservision eye vitamins if anyone could use them. They are good until 12/31/10 Will give them away, just need a postal address.

• CRD and Supplements
• Posted: 2010-11-13 17:21:11 By Randall H
• Christine - I too have CRD and take 1000MG of DHA and 20 MG of Lutein each day - per my specialists request. I couldn't tell from your post if your son also takes the Bausch and Laum PreserveVision (you mentioned coupons). In case he does, I wanted to relay to you that my retinal specialist has specifically told me not to take supplements with Vitamin A. His explanation to me is that Cone Rod Dystrophy's underlying issue is the inability to dispose of the waste material left from the retinas use of Vitamin A. Therefore additional Vitamin A actually hurts more than helps. Certainly you'd want to check with your retinal specialist - just thought I pass this info along.
  BTW - I'm 57, have been diagnosed for about 16 years (by 4 different retinologists - (I guess it's unanimous at this point). While my central vision is slowing closing in - as is my peripheral vision, I'm still correctable to 20/25.
  Let me know if I can help with any other info.
  Randy Houlas, Anna Maria, FL
  randy.houlas@amarklogistics.com