Please login to post a response.

• cone rod dystrophy
• Posted: 2009-06-07 12:49:24 By Sue Y
• My 14 years old son has just been diagnosed with cone rod dystrophy. He was also first diagnosed with having stargardts. The website indiates most people with CRD go blind at the age of 50. Will the progression stablize at some point? His visual acuity is 20/200. I am very concern how this is going to effect him later in live. It's hard to find information on this condition because it is so rare. Hope there will be a cure soon!
  
  Regards,
  Sue from Canada

• Posted: 2009-06-16 15:32:52 By Charbel S
• It is hard to predict the [rogress of CRD. I am 39 years old and can still see enough to type this message. My biggest problem is day blindness.
  
  I have been told and found it to be true that each patient progresses differently, but the best way to tell is by comparing with relatives. The progress of the disease is similar in family members.

• CRD
• Posted: 2009-08-17 19:40:41 By Stephanie H
• Sue...
  My son is 11 and was diagnosed one year ago with CRD. His acuity is also 20/200. We just had a follow up ERG and found that it is progressing at a "normal" rate. It was explained to me that he will continue to loose 10% per year - although the amount decreases each year as there is less to loose. Again, it depends on his particular case. You may not know until you have a follow up ERG to judge apples-to-apples. It can be a long wait.
  Stephanie from Indiana