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• cone rod dystrophy
• Posted: 2009-03-10 21:39:19 By wendy m
• My son has just been diagnosed with Cone rod dystrophy; he first was diagnosed with having Stargarts but since his last test his diagnose has changed, I have tried to find out more about Cone rod Dystrophy and how far will his eye condition will go, so I could try and prepare him for his future, so far no one can help me as Cone Rod dystrophy is not very common in New Zealand. Does anyone know will my son go completely blind?

• conerod dystrophy
• Posted: 2009-03-28 00:04:00 By Miranda L
• I am 26 years old and i have cone-rod dystrophy. My vision dramatically decresed when i was 23 years old (and pregnant). Before then, i was able to drive a car and function normally with corrective lenses. Now my vision is 20/80 in one eye and 20/100 in the other WITH the corrective lenses. My symptoms are sensitivity to bright light, difficulty distinguishing between colors, night blindness, and difficulty focusing on print. The best advice i can give to your son would be to be thankful for the vision you have, that's how i try to look at things. This disease is (usually) a slow progression of vision loss so he should have some useful vision for most of his life. i think the hardest part (for me) is my loss of independence, a supportive and understanding family makes all the difference.