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Search Message Boards » Retinitis Pigmentosa

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  • rp
  • Posted: 2013-04-29 09:44:02 By Ernest C
  • hi i am a 52 year old man who has been night blind for as long as i can remember. A little over a year ago i was diag. with rp. For the last several months i have had bright lights that swirl around in my eyes . This happens wheather i have my eyes open or closed. I am wondering if this is part of rp or some other problem. I have asked my Dr. but nobody seems to know why this is happening
  • Posted: 2013-05-17 01:15:58 By Alexis C
  • I have the same thing, the lack of answers is discouraging.
  • Alyce Moore
  • Posted: 2013-05-20 01:51:40 By alyce m
  • the lack of responds is because many people do not want to discuss rp,I was diagnoised in august and now I am working on getting some acceptance with rp. a few hours aga I met a man who was blind with rp and has a brother with rp who is not blind. I had to reach out to other's so that I will not feel so alone with Rp.
  • Alyce Moore
  • Posted: 2013-05-20 02:07:30 By alyce m
  • Them lights are symptoms the way to stop them is to try eat sardines, tune ,herring, and they will stop for a while as long as you continue to eat the things.
  • rp
  • Posted: 2013-05-22 14:38:18 By Ernest C
  • thanks for the response on my message both of you alexis and alyce there dosent seem to be very many people who will respond. I will try the fish remedy because nothing else seems to work. I also find the lack of answers discouraging. I wish you both the best
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