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  • TUDCA RP Treatment
  • Posted: 2011-11-11 09:41:11 By Eileen M
  • Subject: TUDCA RP treatment

    Hello,
    I have RP and I learned about Touroursodeoxycholic Acid (TUDCA) treatment to stop vision loss in RP at the June 2011 VISIONS conference of the US
    Foundation Fighting Blindness, which was held in Baltimore, Maryland. Since then I have begun, starting two and a half weeks ago, to take the form available in the United States (Liver Longer by ThermoLife, available through amazon.com and various). I am searching for other persons who are taking TUDCA for RP or who are interested in researching this topic.

    The US Foundation Fighting Blindness is currently funding a study at a university in Oregon on non-human primates to determine the therapeutic
    dose of TUDCA for RP (though I understand that it is believed to probably start at 1500 mg/day). Basic info about TUDCA is available at
    Wikipedia: http://en.wikipedia.org/wiki/Tauroursodeoxycholic_acid

    Please contact me by email at eileenem@bestweb.net if you would like to discuss the use of TUDCA to stop or slow vision loss in RP (my form of RP is probably autosomal dominant).

    I look forward to hearing from you!

    Eileen
  • Posted: 2012-03-09 13:11:59 By Jonathan Y
  • Hi Eileen, have you found a valid supplier for TUDCA? It seems that Thermolife doesn't supply anymore.

    Thanks,
    Jonathan
  • Posted: 2012-04-01 21:18:32 By Carolina S
  • I have been taking TUDCA on and off for about 1 year. I have not seen any improvements nor I am stable.
  • TUDCA
  • Posted: 2012-04-14 10:42:48 By Niranee W
  • Can you tell me how to particitpate? I got RP.
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