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  • TUDCA RP Treatment
  • Posted: 2011-11-05 11:41:40 By Eileen M
  • Subject: TUDCA RP treatment

    I learned about Touroursodeoxycholic Acid (TUDCA) treatment to stop vision loss in RP at the June 2011 VISIONS conference. Since then I have begun, two weeks ago, to take the form available in the United States (Liver Longer by ThermoLife, available through amazon.com and various). I am searching for others who are taking TUDCA for RP or who are interested in this topic.

    The FFB is currently funding a study at a university in Oregon on non-human primates to determine the therapeutic dose of TUDCA for RP (though I understand that it is believed to start at 1500 mg/day). Basic info about TUDCA is available at Wikipedia: http://en.wikipedia.org/wiki/Tauroursodeoxycholic_acid

    Please contact me if you would like to discuss the use of TUDCA to stop or slow vision loss in RP (my form of RP is probably autosomal dominant).

    I look forward to hearing from you!

    Eileen

  • Interested
  • Posted: 2012-04-14 08:17:03 By Niranee W
  • I have RP and I am interested TUDCA.How can I participate?
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