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Search Message Boards » Retinitis Pigmentosa

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  • LET'S CHAT
  • Posted: 2011-08-13 18:30:00 By Tony R
  • Hi! This is my second time posting this message. My name is Tony and I am a 44-year old man with RP living in New Jersey. I would like to exchange e-mails with other people who have RP so that we can share experiences and advice. Come on guys, nobody can deal with this alone! Write to me at Tony1967@comcast.net
  • Hello
  • Posted: 2011-10-07 22:43:35 By
  • Hello Tony,
    My name is Debby, I am 43 and found out about 2 years ago that I had RP. I guess looking back on things, it made sense why I tripped, walked into things all the time, had many car accidents and on and on..... I am here to email and would be interested in hearing about your experiences.
    Take Care,
    Debby
  • Me and my Rp
  • Posted: 2012-04-30 12:41:20 By Cindy L
  • Hello Debbie.
    I'm Cindy Lou 43 diagnosed with RP when I was 28 years old. i saw you replay to a posting here and thought that yes we can chat and I have a facbook page of the Guiding Eyes for the Blind Pup that I raised. If you have fb look me up it's OhSean Dog - dog Yes oh Sean ran togther by mistake.
    Look me up and we can chat more?
    Or email me at cindyloubo@hotmail.com
  • Hi
  • Posted: 2012-03-26 18:51:12 By Gennifer C
  • Hi Tony. When did you find out you have RP? I have a friend who is 37 and he is the only male in his family to ever have gotten RP so he never had a male around with the disease who could understand what it's like for a man to have RP. I would love any advice you could give me to help him cope.
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