Background
Gray font color on white background Black font color on white background White font color on black background White font color on dark blue background
Font Size
Search Message Boards » Retinitis Pigmentosa

<< Back to Forums

Please login to post a response.

  • Books for child
  • Posted: 2011-01-30 04:26:07 By Andrea R
  • My daughter was diagnosed with RP in Dec. 09. She is now almost completely blind. I'm having a very hard time with it. She does have other issues and is a little developmentally delayed. she is 9 now and understands a little. My question is does anyone know of some really good books to help me explain to her that her sight is going?I need some help or right words to tell her that she is no longer gonna be able to use her eyes. HELP! Thanks Andrea
  • Hi Andrea
  • Posted: 2011-02-01 14:58:39 By jordan c
  • I have RP and I'm sorry that your daughter RP mutated so fast. I never heard of someone having RP and than getting it in such a short period of time. I recommend you apply for Social Security Disability for your child. I have a friend on facebook who has some amazing info on RP
    here name is Olesya Maximenko. She is very knowable of RP and I hope she can help.

    http://rpigmentosa.livejournal.com/33170.html
US Images

Chapters

Select a state from the dropdown below to view local chapters.


Free Information

Register here to receive free information about your eye condition and research efforts to find treatments and cures.

2012 Annual Report banner
VISIONS 2013 - Side Box banner
VisionWalk banner
Events Calendar