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• Hey everyone
• Posted: 2010-06-07 17:49:36 By samantha r
• My name is sammie, I am 21 and just found out that I have RP. I am just curious how others are handling it. you see I am from a small town and no one aroud here had even heard about RP before i got the news. So it has been hard to deal when know one has a clue what your going threw. I then found this web site and discovered a little hope. There is not an open chapter in my state :( but I hope to here back from anyone willing to let me know I am not alone.

• sup*
• Posted: 2010-06-09 20:26:04 By Oscar N
• I meant to post it on here, where are you from Sammie...?

• Hi
• Posted: 2010-06-11 07:03:19 By Samantha R
• I am from oklahoma.

• = .
• Posted: 2010-06-12 23:53:27 By Oscar N
• How is it that you found out you had RP, what made you think there was something off about your eyesight..?

• my story
• Posted: 2010-06-13 00:49:45 By Samantha R
• The town i grew up in only has one eye doc. My whole life he told me i only needed reading glasses. About 7 months ago i moved to a different town and got a computer related job. About a month into it i noticed i needed to get my glasses redone. I seen a new eye doc. And what started out as a simple check up ended with i am sorry but you have RP. How about you? do you have RP?

• Yup
• Posted: 2010-06-13 14:39:13 By Oscar N
• Hey Sammie,
  
  Yes I do have RP. All my life, I was diagnosed when I was 17. So you could imagine at that age it's not something a teen wants to hear.

• Posted: 2010-06-13 23:37:18 By Samantha R
• Yea i do understand.

• day
• Posted: 2010-06-14 01:57:14 By Oscar N
• So how was your day..? If you ever feel like venting or just talking about whatever, you can drop me a line via e-mail instead of looking for a post,
  
  essay818@hotmail.com
  
  

• Posted: 2010-09-21 01:32:20 By
• Hi Sammie,
  
  I understand the strange feeling you probably have now. I'm 27 and I was diagnosed with RP when I was 23. Like you, I felt like no one understands. Actually I sometimes still feel that way. No one can see through your eyes to really get it. My husband knows me best, but even he sometimes gets it wrong (forgets to help when I need help, or thinks I need help when I don't.)
  
  Sometimes it feels hopeless, but usually I try to focus on what I have now. I have pretty good sight (I can still drive in the daytime). I try to live and do the things I want to do.
  
  Not knowing how the disease will progress in the future is the worst! However, again I just go forward with what I can do now. We could spend months speculating on possibilities or worrying what we can't do tomorrow. Take each day as it comes and live life.
  
  If you want to talk more, you can email me through my website: www.arlissavaughn.com - I don't like to put my email online because of the spam that gets sent, but I will get your message and reply.

• Reply
• Posted: 2010-11-21 01:08:23 By Mansel R
• Hi there,
  
  I am 21 years of age and yesterday was diagnosed with RP. My email address is rajaharamjane@live.com. This is my mums email address. I have total faith that this is not going to spread further. Please contact me should you need to chat

• RP
• Posted: 2010-11-21 14:30:40 By Mansel R
• Hi
  
  My son is also 21 and we from south africa
  And was diagnosed yesterday with rp.