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Search Message Boards » Retinitis Pigmentosa

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  • hello
  • Posted: 2010-02-15 19:00:48 By Dana J
  • hi my name is dana. I'm 19 years old i was diagnosed with Rp when i was 15. i live in michigan and i'm a freshman at Northwestern Michigan College.i no longer drive. I have no night vision and side vision. I'm starting to lose my color vision. I'm new to the message boards and i guess i'm just looking for any advice dealing with living with RP as a college student or any new information on RP.
  • Dana
  • Posted: 2010-02-16 00:48:28 By racer x
  • hey dana,

    sorry to hear you are having to deal with this rp stuff...i too have rp and live in michigan. i was diagnosed at 15 as well but it did not start getting real bad until mid 20's. i am 35 now with no peripheral vision or night vision and i too am losing my color vision.. not fun times indeed...
    i check this site every now and then .i use to come on alot but they changed their message board format so alot of people left..if you go to www.mdjunction.com and look for the rp forum you will find a whole bunch of us..and i know their are a few girls your age on there too.
  • Posted: 2010-02-18 02:34:07 By Dana J
  • thank you i appreciate you telling me about the website
  • Want to help you Dana
  • Posted: 2010-02-19 19:39:26 By Alvaro G
  • Hi Dana:
    I am Alavro and have RP, I am not in college but know someone who may help you or actually many that will help you and support you.
    I run an Online Radio show about RP called Hopetalk:
    http://hopetalk.podbean.com
    If you search for my email on Facebook you will find me and many people of all ages with RP:
    luckyguy135@hotmail.com

    Hope this helps.
    Stay Hoepful!
    Alvaro.
  • hey dana
  • Posted: 2010-03-16 23:03:07 By Jacson M
  • i been having RP from the time i was 8yrs old im 35 now..in the doctor say i will be all the way blind by the time im 44..but thats what they say..the only thing different is im not losing my color vision,i dont drive at night cuz i cant c at night
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