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- SOS
- Posted: 2010-01-25 18:58:37 By courtney j
- Hello to anybody who reads this. My name is Courtney I am the mother of two beautiful boys. Kane is 2 and Korben is 1. Kane was diagnosed with RP July 2009. I was noticing Kane was falling short of some of the benchmarks in the parenting books, I wasn’t really worried to much about block stacking or silverware using too much because what kid really does? But he was really cautious and just never really made eye contact of course I brought this stuff to the pediatrician. Well any how after being told by plenty of doctors and an optomologists that I was in fact an over reactive mother, I decided to go to a children’s hospital in the next state. With in fifteen minutes the children’s optomologist told me my son was far sided and legally blind and then he asked if I had the time to do stay and do further testing. He asked me if he could put Kane under Anesthesia and do some light testing in the back of his eye so he could see Kane’s retina. I agreed and by that time was in shock having went from being the “over-reactive mother” to the mother of a two year old that was going blind. After the test was over the doctor told me to get him to a school for the blind, file for social security, and get him glasses. They also said his brain might be degenerating. Well so far I had a u-haul donated to me. I moved me and my two sons to salt lake so Kane could be in the early intervention program. He is supposed to start preschool and the school for the blind in the fall. I’ve been laid off from my job and now im being evicted form my apartment because I can not come up with rent. I need help form anyone or if anyone knows of organizations that help with rent, please let me know. I’m having a hard time staying positive.
- to courtney
- Posted: 2010-01-26 23:38:05 By racer x
- courtney i am so so sorry you are going through all this...i have rp but do not have kids and am not quite sure of resources but what i can do is send ya this link www.mdjunction.com there you can look for the rp forum...this message board does not get a lot of traffic since they changed their format...the people at the site i gave you are great and supportive and can probably point you in the right direction...hope this helps!




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