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• New to message boards, old to RP
• Posted: 2009-12-08 11:35:26 By Linda D
• My name is Linda, live in north Ga. I was diagnosed with RP in 1997-how time flies!! I took the news pretty bad back then, but 12 yrs later and thank God (literally) I still have central vision. It has worsened from '97, yet pray daily for degeneration to stop. You know, loosing vision
  at 41-after years of going and doing as you please
  is pretty hard to adjust to. I'm a single mom and
  my youngest is graduating HS this year, then I will be all alone up here. I have pondered the idea of trying to locate a local chapter, but what
  would they do? I've always been so independant, I hhesitate to contact them. Any comments on what the locals do would be appreciated. God Bless you aall, Linda

• Posted: 2009-12-21 14:54:17 By Darran Z
• Hi Linda,
  
  There's nowhing wrong starting a chapter. Advocating for yourself doesn't mean you are any less independant, just means you are making this issue to become an awareness issue.
  
  You sound like you'll be lonely with your youngest graduating. Have you considered getting a guide dog? They are a huge help! Trust me, as a "Mr. Mom" I love my guide. He helps me get to my kids' schools and everywhere else I need to go. He really are a big help to me.
  
  Darran

• I understand how you feel
• Posted: 2010-02-13 21:34:54 By barbara d
• I am 53 and like you I have always been independent. I have had amilitary career and this year my twins sons are leaving for college. Though I am married, I basically am alone with this disease.I too am wondering if I can find a chapter to belong to, or if there is someone in my own town that has this. It would just be great to talk to someone who knows how I feel. So I know how you feel. You wonder what is the future going to hold. How will I get around,, so many things I think about. I think support will probably be the best thingfor you and I.