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- A cure for RP on its way soon
- Posted: 2009-08-13 13:12:21 By Alvaro G
- Hi everyone:
This last post here was very honest and I am happy someone said it like it is.
I have been uptodate with latest research and latest clinical studies since 1995 when I was diagnosed with RP at age 19, now after so many years I can assure you all that my hope for a cure for RP in the next 15 years is VERY REAL.
I had the pleasure of being the patient of one of the best Retina doctors in all Latinamerica and he said that our best hope is STEM CELLS RESEARCH, he says although the chip implant and the artificial eye can be cool and work ok the amount of sight that we can get is not extremely optimistic, obviously cant restore what we dont have.
He said that genetherapy is in his opinion a risky business, because the long term effect of it is not clear at all.
However the stem cells transplantation when we are talking about retinal cells that were damaged by RP, that is a real hope, that healthy retinal cells can be transplanted into an eye and can substitute or better yet regenerate the dead cells restoring the vision.
This research is being lead by some Americans and British scientists and ophthalmologists and the belief of my doctor was that in the next 15 years there really may be a ttoal cure for RP with this process.
So I staye xtremely hopeful and optimistic and I alsow ant tot ake this opportunity to offer my friendship to anyone interested in a friend who understands whats going on in life when you have RP.
My email is: alvarorp30@yahoo.com
And alstly I want to wish my doctor the best in Heaven, he passed away recently due to Cancer and I miss him alot.
I will always remember his advice and hope that gave me.
I am moving to the US ina couple of years and will look for ana wesom doctor like him.
God Bless You All.
Alvaro.









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