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Search Message Boards » Retinitis Pigmentosa

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  • Posted: 2009-07-24 10:52:22 By Jane D
  • hi there everyone,
    my name is Jane DeVinney and I have RP. Has anyone that post or reads here ever gone to the RP chat room on Wednesday nights> I used to go there every week until it dwindled down to no one ever being there.
    I have met many great friends there and still keep in touch with some of them.
    I will try to be there on Wednesday night s and chat too.
    My RP was dicovered when I was in my early 30's and am now 55. my younger sister also has RP but she still drives and works. I am on disability.
    Hope to see someone in the RP chat room!
    Jane
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