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• Getting RP and Macular Degeneration Treatments in other country's
• Posted: 2009-03-20 11:23:53 By Max S
• Does anybody tried getting treatments in other country's? If you one of those people, please share information about what kind of treatments you have done overseas? Personally I gave up on US vitamin treatments 17 years ago and getting my treatments in Eastern Europe every year or twice a year.

• Posted: 2009-03-20 19:13:21 By Darran Z
• Why would one want to get treatment for MD and RP? They are entirely different diseases.
  
  Vitamins for RP do not work. This is a very contreversial issue.
  
  As for other treatments in other countries, if there is a "claim" it's likely to be untrue. Alot of the research done in other countries are done in collaboration in the US as well. I've heard of a few people with RP go to other countries only to return with disappointment.
  
  RP is a genetic issue. It's not like there is an easy treatment for it to begin with. There are hundreds of genes responsible for RP which make it difficult to make a "blanket" approach to treating it.
  
  Darran

• re: Getting RP and Macular Degeneration Treatments in other country's
• Posted: 2009-03-21 07:06:38 By Max S
• Well, I inherited my MD from my father and started therapy treatments with 3 primary drugs like Encad and now Retinalamin and Cortexin. All drugs are made in Russia and will not make to US anytime soon I think. FDA Politics... Anyway, I see more effect from the Retinalamin and Cortexin. The use of Retinalamin (a peptide preparation from the retina) in such cases has been shown to stimulate functions of photoreceptors and other cellular elements of the retina and promote the restoration of retinal photosensitivity. The drug normalizes blood vessel permeability, diminishes manifestations of inflammation, and stimulates reparative processes in injured eye retina. Anyway, it slows down the possess of loosing my eye site. I think its better option, then loosing it.

• Posted: 2009-03-23 15:19:03 By Darran Z
• Back in the 1980's Russia was one of the leaders in the study of ophthalmology. Since then, they have all fallen down. I would be cautious from any claims they state. This is coming from someone who is familiar with research around the world. This person is currently a researcher at John Hopkins University.
  
  You are free to do whatever you want. But from the many people I know personally that have pursued these thigns outside the States, have come back disappointed.
  
  Darran