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Search Message Boards » Retinitis Pigmentosa

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  • To Katie
  • Posted: 2009-03-16 10:21:53 By Alvaro G
  • Hi, this is Alvaro, I am sorry to hear about your bad week but things will get better, trust me, besides there will be a treatment soon to help us all, I am sure of that, you will drive again someday soon, stay positive!
    If you want to chat, youc an email me at: alvarorp30@yahoo.com.
    Now I want to recommend you a terrific website where you will find RPers who have cataracts like you and they are going thru the same you are, I have cataracts and they are just forming and for now I will not get the surgery done.
    The website is:
    www.mdjunction.com

    And I also recommend you to join the Retinitis Pigmentosa group on Yahoogroups, is like a mailing list for RP, very useful with nice people too.
    Hope this helps abit and stay positive, all is going to be just fine.
    Alvaro.
  • hi
  • Posted: 2009-10-01 09:46:57 By tennessee t
  • I have RP .the treatment that works for me for now is Microacupuncture. This has helped keep my vision stable until a cure can be found. The phone number to the clinic I recieve treatments is 1 304 255 1123, The Dr. is Per Otte, this is in Beckley WV. This to me is a good alternative treatment for most retinal diseases until a cure is discovered, considering there are no treatments available at all.
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