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• Dr. Dong Feng Chen - Schepens Eye Research Institute
• Posted: 2008-10-10 17:07:13 By Thomas P
• Hi all...
  
  MY PERSONAL THOUGHTS
  --- UTMOST PRIORITY ---
  
  Recently, The RP Foundation (Int'l) presented Dr. Dong Feng Chen
  from Schepens Eye Research Institute, (Harvard) the 2008 award for
  outstanding achievment for her work on "awakening retinal stem cells".
  
  Not only do I applaud the Foundation for choosing Dr. Chen, but it's her
  invention and process that is light years ahead of any othre proposed
  treatment, including CNTF, which in my opinion is "dwarfd" and
  "archaeic". With the CNTF model, a capsule is surgically implanted into
  the eye which leads to a very inefficeint delivery system, and further
  complications.
  
  Dr. Chen will simply use a drug to re-awaken the rods and cones
  (photoreceptors) that are already in your eye - just sleeping.
  Thus minimizing potential conflicts.
  
  The bottom line here is that finally, she is now recognized by not only FFB
  and other highly medical institutions but is light years ahead of any other treatment
  which WILL lead to a cure for Retinitis Pigmentosa.
  
  I strongly believe with all my heart that Dr. Chen will DELIVER US from this pestilence.
  much sooner than later. How much sooner? That depends on your support.
  She needs all the help we can provide her .
  
  Her work and research path that she has ventured upon leads me to proclaim that
  I HONESTLY BELIEVE THAT SHE IS THE "CHOSEN ONE"
  
  Please help Dr. Dong Feng Chen's cause, so she can help us.
  I KNOW she will have the CURE. She said that she was committed to it.
  There are no other words that I can express, that lead me to believe that her methods
  and processes can quite possibly border on - logically miraculous.
  
  After reading these links below, how can you NOT want to help her cause.
  
  Let me know your thoughts and or coments.
  
  Link:
  http://www.schepens.harvard.edu/news/dong_feng_chen_rpi_award.html
  Link:
  http://www.sciencedaily.com/releases/2008/03/080318113517.htm
  
  Tom
  --- SEE --- YOU ALL SOON??? (Probably)

• Posted: 2008-11-06 18:02:11 By Sarah D
• any research like this is great news for us, but i can't help but wonder if you view rp as some sort of death sentence. "DELIVER US from this pestilence"? i think pestilence is a strong word and it's incorrectly used in this situation. the merriam-webster definition is:
  
  1: a contagious or infectious epidemic disease that is virulent and devastating ; especially : bubonic plague
  2: something that is destructive or pernicious
  
  having rp sucks no doubt. i'm in college and all my friends have graduated while i'll be taking a fifth year. i never got my license and there is definately a sense of loneliness as no one can relate to what i have to go through. but i don't think having this disease is a curse or equivalent to the bubonic plague. in some ways i think i have become more unique because of the experiences i have had to go through with rp, and i like to think i'm a better person for it. our struggle is not an easy one especially since it's not well-known (having people give you stares because you don't "look" disabled is frustrating) but it's also not a terminal one. it's not an evil curse but simply part of life. everyone has crap to endure but it doesn't mean we can't move past it and enjoy life in spite of it.
  
  don't get me wrong, i am totally stoked for any promising news about a treatment or a cure. i was diagnosed 5 years ago and it doesn't seem like too much has been done since, but anything is one step closer and i am eternally optimistic.
  

• Posted: 2008-11-07 19:31:33 By Vicki T
• Sarah, I totally agree with everything you just said. You go, girl!!! I am also very excited about this Dr,'s stem cell research on awakening the cells in the retina. It sure is encouraging and I will always believe there will be a cure for RP in my lifetime. Never ever give up hope! Have a great day.
  Vicki T