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• Stemm cells treatment
• Posted: 2008-04-17 17:59:52 By Ricardo S
• Have anyone done or heard something about this new stem dells treatment that is currently being done?
  
  Site pf Pharma Inc.:
  
  
  Treatment that is being done:
  
  
  If anyone knows something please tell me, because I so interest in do this treatment.
  
  Many thanks, Ricardo from Brazil!
  MSN to contact: cado.bs@hotmail.com

• Re: Stemm cells treatment
• Posted: 2008-04-17 18:03:48 By Ricardo S
• Treatment that is being done:
  
  Health and Wellness News
  
  A NEW STEM CELL PROCEDURE FOR RETINITIS PIGMENTOSA (RP)
  "THE TEMPLAR AMNIOTIC STEM CELL IMPLANT"™
  
  Las Vegas, NV 11/14/2007 03:30 GMT (TransWorldNews)
  
  
  
  This procedure consists in an implant of amniotic membrane telomerase enhanced, rich in stem cells of embryonic type (but not of embryonic origin) performed on both temples of the recipient in a square area delimited by the superficial temporal segment of external carotid, its temporal and orbital branches and the orbita.
  
  (This description is intended to familiarize the reader with the area of implant and is not to be constructed as the exact anatomy of the area.)
  
  After local anesthesia of the area the surgeon performs an incision 1/3 inch long on both temples, enters under the skin with a blunt instrument, and creates a pocket in which a certain amount of amniotic membrane is being introduced. The incision is then closed with a stitch and a band aid is applied.
  
  It is hypothesized, that after the implant, the stem cells find an easy way to penetrate the ophthalmic artery, whose branches would become the central retinal artery and the ciliary arteries on either side of the optic nerve, and than enter the eye and the retina. It is assumed that the stem cells from the implant would be able to reach retina in a matter of minutes. However in many cases the retinal arteries are closed showing the “waxy” color, meaning that functionally they ceased to function. In order to penetrate these arteries or eventually open them, a feature that is considered impossible by the retina eye specialists, a strong blood vessel opener, Niacin the vit B3 vitamin in the B complex group of vitamins is being used. The use of Niacin induces almost instantly hot flashes on the face and head, with intense reddening of the face.
  
  These symptoms last minutes or hours, but are usually well supported by the majority people using it.
  
  It should be noticed that simultaneously with the “Templar Implant” two other implants are performed on the lower part of the abdomen in the pubic area, where larger amounts of amniotic membranes are inserted (description of this technique can be found in our news release of July 23rd, 2007). They are intended to provide a steady release of stem cells that would circulate all over the body.
  
  As such patients with RP and related conditions (Usher’s Syndrome, Stargardt disease) are receiving a total of four implants, two intended for the body as a whole, and two destined specifically to the eye and retina.
  
  Encouraged by the results obtained so far in RP, we plan to introduce the “Templar Implant: procedure to other conditions affecting the brain, namely Multiple Sclerosis, ALS, Parkinson’s, Alzheimer’s, and aging.
  
  The Templar Implant is performed, at the present time by Dr. Omar Gonzales, StemCell Pharma’s Medical Director at a stem cell clinic in Mexico.
  
  The site of Pharma Inc, can ben found in google, by writting Pharma Inc

• Re: Re: Stemm cells treatment
• Posted: 2008-04-17 21:50:20 By Darran Z
• Ricardo,
  
  Stem Cell Pharma is a joke. Just Google Sapse FDA and you know that Dr. Sapse has been shut down by the FDA for not following protocol. He has evaded authorities. You'll find him on the list of people the FDA watches every movement with because of this. He's known as "Dr. Quack" among RPers who are familiar with research progress.
  
  Darran

• Re: Re: Re: Stemm cells treatment
• Posted: 2008-04-18 14:59:11 By Vicki T
• I guess it's like they always say, "If it sounds too good to be true...it usually is!" Bummer. But I will never give up hope that someday there WILL be a cure for RP and other eye diseases. It's just too bad there's "Drs." out there like this one giving people false hope and taking advantage of them. Darran, thanks for letting us know this Dr. is a "quack".
  Vicki T

• Re: Re: Re: Re: Stemm cells treatment
• Posted: 2008-04-18 17:45:13 By Ricardo S
• It´s really good to know this from Dr. Quack, I want to do the ECTF trial, but it´s closed. Do you know other stem cell treatment to be done at the moment?
  

• Re: Re: Re: Re: Re: Stemm cells treatment
• Posted: 2008-04-18 22:50:29 By Patrick C
• My knowledge of this is very limited. My oldest brother, whom also has RP was listening to the radio. It was a talk show. I guess there was a dr on it. A guy called in and said that his father had RP and if there was anything out there. The Dr. told him that in China, they are starting to perform Stem Cell implants on human patients. He also said that they are going to bring it over to the states this year, in Oregon to be exact.
  
  My Aunt also seen something on the tv about it. Not sure if it was the same thing my brother heard on the radio, but they said they are going to start Stem Cell implants.
  
  There is a number you can call to order a newsletter. I believe it's 4 a year. It costs $19.95, plus $3.00 Shipping and handling. The number is 1-866-783-6123 I sent off for it about a week ago. Hopefully it'll tell about some good news.

• Re: Re: Re: Re: Re: Re: Stemm cells treatment
• Posted: 2008-04-20 17:09:32 By Darran Z
• Ricardo,
  
  I'll answer both your posts in a single post.
  
  CNTF is closed ys, but they are pushing for this to be available and I beleive this will be the first formal treatment for RP approved by the FDA. There are alot of competition and many different research going on right now.
  
  As for Stem Cells, the problem with this research is telling stem cells to develop into photoreceptor cells. China is not really working with Stem Cells. They are doing a different approach but it is not called Stem Cell. I cannot remember the exact. My friend in Israel told me about this and actually spoke to some researchers in China about this and learned it wasn't stem cells. It is a different, but very important cell in the retina.
  
  The FFB is working hard to incorporate China's research and help fund that as well. Which is likely why it may be coming to Oregon and if it is, then I know who the doctor would be. I should inquire about this.
  
  For any future trials you want to read, go to www.clinicaltrials.gov and type in retinitis pigmentosa and see all the current clinical trials for RP.
  
  Darran

• Re: Re: Re: Re: Re: Re: Re: Stemm cells treatment
• Posted: 2008-04-20 20:07:11 By Patrick C
• I received the Stem Cell Research Report. It says they are working with Embryonic Stem Cells. I will have my g/f type up the article so I can post it here. The way it sounds, it sounds promising.

• Re: Re: Re: Re: Re: Re: Re: Re: Stemm cells treatment
• Posted: 2008-04-21 21:57:32 By Ricardo S
• Thank you fot the information and I will eiat your further information as you said.
  
  It´s really good to us be informed about new tratment and researchs!

• Re: Re: Re: Re: Re: Re: Re: Re: Re: Stemm cells treatment
• Posted: 2008-04-22 14:51:48 By Darran Z
• Ricardo,
  
  I have remembered and found that the cells that the Chinese researchers are doing are called Schwann Cells in the retina in regenerating photoreceptor cells. A little different approach than stem cells.
  
  Darran

• Re: Re: Re: Re: Re: Re: Re: Re: Re: Stemm cells treatment
• Posted: 2008-04-24 10:42:37 By Patrick C
• Darran, do you know anything about these Schwann Cells? Do you know the progress they have made with these?

• Re: Re: Re: Re: Re: Re: Re: Re: Re: Stemm cells treatment
• Posted: 2008-04-24 10:43:04 By Patrick C
• Darran, do you know anything about these Schwann Cells? Do you know the progress they have made with these?