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Yep, Im the CNTF rulebreaker...
Posted: 2008-03-04 22:12:45 By heather p
Hey everyone...It has been awhile since I have posted anything-the last 6 months have just flown by. I have just returned from a month long trip to Europe (where even with bumpy cobblestone streets and tons of stairs I didnt trip once! YAY) and am 5 months pregnant. Neurotech has been womderful about letting me keep my implant. As many of you know, one of the rules for the study is to not become pregnant or breast feed while in the study. THey said it was fine and that I might just need to undergo additional testing but overall weren't too concerned. I was so relieved!!!

The implant itself is fine. Haven't noticed any huge change but like I said, made it traveling around and did pretty well considering. :)

Hope all is well with you and I'll try to pop in more often. Cheers!

Re: Yep, Im the CNTF rulebreaker...
Posted: 2008-03-04 22:52:21 By Nikki s
oh wow congratulations on both! thanks for popping in!!! i forgot . were you in the late or early stages?

Re: Re: Yep, Im the CNTF rulebreaker...
Posted: 2008-03-05 03:58:46 By heather p
Thank you very much! Its been very crazy around here to say the least :) I am in the early stage and was implanted last April.

Re: Re: Re: Re: Yep, Im the CNTF rulebreaker...
Posted: 2008-03-05 17:43:05 By heather p
Thankx. I guess it isn't so much that what is releases is harmful to the fetus, they just didn't want that to be in the parameters of this study.

Yeah, my parying days are over for awhile now! :)

Re: Yep, Im the CNTF rulebreaker...
Posted: 2008-03-05 14:00:15 By Katie V
Congrats on being pregnant and getting to keep your neurtech. That is great news.

So has the implant worked for you. We need to know all the details

Katie

Re: Re: Yep, Im the CNTF rulebreaker...
Posted: 2008-03-05 17:44:18 By heather p
I haven't noticed a significant difference one way or the other...just not a rapid decline either so I figure if I can maintain what I have Im doing good :)

Re: Yep, Im the CNTF rulebreaker...
Posted: 2008-03-05 14:57:06 By Vicki T
Heather,
Cograts on all your good news! I'm kind of a newcomer to this message board and haven't read any of your previous posts. If you don't mind me asking, how old are you and what was your visual acuity and degrees of your visual field before your implant and after? Sounds like you are very happy with the results. That's great.Do you live in the US? Lookig forward to your reply.
Vicki T

Re: Re: Yep, Im the CNTF rulebreaker...
Posted: 2008-03-05 17:46:34 By heather p
Im 31 and was diagnosed right before I turned 30. To be honest I have no idea what my levels/degrees are. I know, seems like basic info, huh? But the same appt I was diagnosed I was offfered a spot in the Nureotech study and immediatly started in on that. A couple months later I was implated, so it happened really fast.

Re: Re: Re: Yep, Im the CNTF rulebreaker...
Posted: 2008-03-05 19:00:08 By Nikki s
heather,

thank you very much for posting and keeping us updated! so is your implant staying in for 2 years? thanx again

Re: Re: Re: Re: Yep, Im the CNTF rulebreaker...
Posted: 2008-03-05 19:56:37 By carolina s
Nikki
The implant for early stage is for 2 yesrs however it has been changed and it will be up to the recipient to have it removed or not. The late stage is for one year and the same thing. If you wish to keep it then you can !
carolina

Re: Re: Re: Re: Re: Yep, Im the CNTF rulebreaker...
Posted: 2008-03-06 00:33:52 By heather p
I haven't heard anything official from OHSU about keeping the implant in longer, but I have an appt. next month-maybe I'll get more info then.

Re: Re: Re: Re: Re: Re: Yep, Im the CNTF rulebreaker...
Posted: 2008-03-06 13:59:55 By Nikki s
hey heather,

could be a premature question but have they told you anything about another phase of this trial or is this one is good how long til the results are made public? i read on neurotechs site it said top line results announce end of fiscal year 2008 which i think is in october. than you again

Re: Yep, Im the CNTF rulebreaker...
Posted: 2008-03-07 08:57:23 By Danette D
Thanks for keeping everyone up to date with your progress. Good Luck with your pregnancy and new baby...

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