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• Question about diagnosis
• Posted: 2008-01-18 15:54:41 By Becky N
• I have never posted here but read others post often and have found alot of the information very helpful. I recently obtained a copy of my medical records and instead of helping it has only seemed to confuse me more. The dr. has indicated that his impressions are rod/cone dystrophy and minimal macular edema. He also indicated my visual field testing showed constriction to ten degrees. The ERG I had done many years ago states that I have advanced disease of the outer retina such as RP as all waves were flat during the test?. But the diagnosis that is listed is macular schisis which I have never heard of and can not seem to find alot of info on either. Has anyone heard of this?? Should I seek a second opinion??

• Re: Question about diagnosis
• Posted: 2008-01-20 13:29:26 By Darran Z
• I wouldn't worry about the Macular Schism. It's merely describing something how a doctor sees the macula as what I recall.
  
  The important thing is the ERG, if they are abnormal, then that is the nail in the coffin to diagnose RP, specifically, in your case, Rod-Cone Dystrophy. Remember RP is a group of retinal diseases so RP really is a bad term to coin our eye disease.
  
  Macular edema is likely to be CME (Cystiod Macular Edema) which often happens with RP. RP increases your likelyhood to exhibit other eye conditions as well.
  
  But from what you posted, it is RP.
  
  Darran

• Re: Question about diagnosis
• Posted: 2008-01-21 15:35:04 By Becky N
• Thanks Darran! I think I am going to go to see another specialist that I found on this website because I just do not think the one I have been seeing is really all that great.