Notice: Undefined index: version in /home/ffbwebSite/home/templates/ffb/index.php on line 62
Background
Gray font color on white background Black font color on white background White font color on black background White font color on dark blue background
Font Size
Search Message Boards » Retinitis Pigmentosa

<< Back to Forums

Please login to post a response.

  • CNTF update
  • Posted: 2008-01-08 20:58:21 By Carol C
  • My brother has his 3 month checkup for visual acuity, and had measurable improvement, even from his 1-month checkup ( they don't tell you any specifics so as not to compromise the research). He notices this, but is more impressed by apparent changes in visual field, which will not be examined until the end. He can read the newspaper again, as it seems like his eyes "work together". Before, it was like looking through binoculars that do not fit your eyes- a spot of vision in front of each eye with something always in the middle. He would read with one eye, and it was so difficult, he gave up. He has a wider area around the edges where he can see in the dark, and has an easier time catching something, although must still turn his head to do this. In March, he will hve an ERG, although I expect we won't hear anything but geheralities about that, either. Carol
  • Re: CNTF update
  • Posted: 2008-01-09 10:13:34 By Luis G
  • Hi Carol,

    It's very interesting what your brother is experiencing, it's encouraging. Alike your brother, I have very similar symptoms. In the last months one of my ayes has deteriorated more than the other one causing difficulty to read (as the example of the binoculars). With the bull's eye form the fovea remains with less damage, however, some very small blind spots are in the fovea and that's why is very difficult to focus sight to read text.

    Please keep us posted and giving us hope.

    Luis G.
US Images

Chapters

Select a state from the dropdown below to view local chapters.


Free Information

Register here to receive free information about your eye condition and research efforts to find treatments and cures.

2012 Annual Report banner
VISIONS 2013 - Side Box banner
VisionWalk banner
Events Calendar